Tag Archives: vocal chord paralysis

It Is What It Is

5 Sep

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I hate that phrase by the way, ‘it is what it is’. My arm hairs bristle every time someone says it. I think because I view it as a cop out, or an excuse, like things can’t change or be changed. I guess sometimes that’s true.

I had my doctor appointment last Friday to finally discuss the ultrasound and MRI findings from a few weeks ago. If you recall, he was on vacation immediately after my ultrasound so I haven’t spoken to him about the results and possible next steps. Well…here’s how it went….Doc: I think you’re good for now, see you in a few months. Me: What about the growth the radiologist saw? Doc: Well, you can do a PET scan but it will say the same thing, abnormal tissue, it’s up to you. Me: What do you think I should do? Doc: Check if it’s grown in 3-6 months…if it has,it’s probably cancer, if not, it’s probably just scar tissue. Besides, no surgeon is going to want to go back in there right now. Me: It’s been 2 and a half years since surgery and radiation, when does scar tissue stop growing. Doc: Now. Just live life as normal and I’ll see you in a few months.

That’s it. Life goes on. Isn’t that true though about anything? Illness, you get fired or laid off from a job, your child leaves for college, you miss an appointment….life ALWAYS moves forward. How do we handle that? There’s only two choices, positively or negatively. I have to choose positive, even if I’m kicking and screaming, because I trust God has a plan. It may not be the same plan I’m thinking, but His wheels are in motion and I’m there for the ride.

Today I wear Bite Beauty Honey Lip Lacquer in Aurora which is of course, red. These are interesting, I saw them on display at Sephora last weekend and had to try. They are all natural and long lasting, actually made from 100% honey. These are high shine glosses and for me, a little sticky but beautiful nonetheless. I chose red because, well, it’s a bold color always reminding me to live out loud with no fear. By the way, I’m done being angry…it gets tiring after awhile (remember my last blog called ‘Tired?’). So here I am, living the dream (another phrase I hate). Cheers!

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Growing up

26 Aug

There once was a girl whose favorite outfit was a pink and white checked bikini, who loved to sing and dance, who sang Tiny Bubbles and Pearly Shells on a 20 hour flight from the Philippines to the United States just when she was 3 years old. She was shy but her parents brought her to see the Detroit Symphony Orchestra and to the theater. They gave her dance lessons and piano lessons and instilled in her a love for music and theater which became her passion and helped her come out of her shell. She wondered what she would look like at 16, at 18, at 20; if boys would like her and think she was pretty. She dreamed of being on the stage, New York City, of even being a princess; and although life has changed and she has gotten older, she still dreams…almost even more than she did as a child. This little girl is me and being in my 40’s now means that if I’m lucky, I still have more than half my life to live, but also means almost half of it is over. I want to keep dreaming and discovering, is that wrong? I have shared some of the things I want to do with some people and they look at me like I’m a little crazy…so what? I refuse to settle. Though no one can go back and make a brand new start, anyone can start from now and make a brand new ending. ~Attributed to Carl Bard

This week my oldest son turned 15 which means in three years he will be a legal adult. He finished driver’s ed on his birthday and got his driver’s permit last Friday. Time has flown and I can’t help feeling sad but excited about his future and his great adventure. He is my child that has always had that ‘old’ spirit. He is very practicle and safe. What are his hopes and dreams for the future? We’ve talked about a few. I wonder what he thinks when he looks in the mirror at himself (which is often, usually flexing his muscles, which I call skin over bones). I pray he has some big dreams and when he tells people about them they also look at him like he’s slightly crazy. I pray he faces life head on and accepts stumbling blocks as challenges. I pray he is kind, that he loves God and others, and that he is fearless. Most of all, I just continue to pray for him and my other children as well, because I know we as parents can’t always be there. Life is funny and fast and crazy.

Today I wear Too Faced La Creme lipstick in Spice Spice Baby which is a pinky brown. I love these lipsticks because they are SUPER moisturizing. This color is an easy color to wear but on me, it does not have enough pink so I add a gloss. I love the name…make life spicy! Also, just to keep you updated…I have not yet done the blood test to check for tumor markers, my doctor has been on vacation but is back this week!  I’ll keep you posted!!

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Breathless

23 Jul

Sunset over the Mediterranean Sea

 

Awhile back I bought a book called The Happy Book by Rachel Kempster for me and my daughter. It is essentially a journal with prompts; you can draw, tape pictures, or just write about things that make you happy. In the future, it can be used as a reference to look back at happy things and make you smile on the days where a smile is hard to find. Recently with the advent of some mixed health news, I put it in my car and started.  The very first entry was to list everything that makes you happy. My list currently has about 85 things listed and is not finished. I have to say while writing all these ‘happy’ things, I had a huge smile on my face. So, this weeks topic for my blogging group is ‘breathless’ which I thought tied into things that make me happy because some of the things  that make me happy are also things that take my breath away. Today I was left breathless when the doctor told me that the extra ‘something’ that was seen on my optic nerve was NOT cancer, just some nerve bundles, normal tisue. There are the small things that make me happy or take my breath away too, like chocolate cream pie, or just a really good candy bar, obviously a new lipstick, and even a hug from someone I love can leave me breathless. Then there’s the big and beautiful things like rainbows and sunsets and the colors of a flower in bloom; or even my kids laughter or watching them sleep. Then there are not so happy things that knock the wind out of you leaving you breathless. Things like hearing the phrase “you have cancer” or “the cancer’s back” or “yes, it’s back again,”; or when you get robbed or when your child is sick, etc. Both instances, good and bad, leave your heart racing and your mind turning in different directions. Both though, the good and the bad give you more life. They allow you to feel something and that’s how I want to live. I want life to take my breath away.

What is it that takes your breath away? For me, life leaves me breathless; the good, the bad, and the ugly. I read this quote last week and it has left an imprint on my mind because this is how I want to be…passionate, daring, and always a dreamer.

“When we focus our energy towards constructing a passionate meaningful life, we are tossing a pebble into the world creating a beautiful ripple effect of inspiration. When one person follows a dream, tries something new, or takes a daring leap, everyone nearby feels that energy, and before too long they are making their own daring leaps and inspiring yet another circle.”- Author Unknown

Today I wear Fresh Sugar Lip Treatment in Passion. This is a tinted lip balm with SPF 15 which comes in 5 sheer colors. I love these tinted balms because they’re packed with vitamins, have great color, and are not sticky (they’re just a little pricey). I chose Passion because I love the name but also, this one is the sheer candy red color…I LOVE it!!!

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Dancing in the Rain

19 Jul

Don’t worry…from a candy store in Spain

Life is a crazy series of events triggering a response leading to, of course, another event. Some things you can control, most things you cannot. Being a woman of faith, God is the master conductor and we are the instruments; sometimes playing the wrong notes, taking the wrong turn, and sometimes playing it right. Together with God though, our story is a symphony even more beautiful than Beethoven’s 5th. If you’re familiar with the song (I’ve attached a link), my life has felt like the first movement for awhile. The past few days, no scratch that, the past month has been a little stressful. From a couple posts ago you know it started with my son having a seizure which led to 3 doctor appointments right up until literally 2 hours before leaving for the aiport on our long European vacation. As an update, at the first appointment the doctor said that there was something wrong on the EEG (brain wave test) so he wanted to do an MRI immediately to rule out a brain tumor before we left for vacation…uh huh. MRI was the next day, then Monday morning we found out it was fine but he was diagnosed with a seizure disorder that he will supposedly grow out of when he hits puberty. OK, I can deal with that, we left with a medication that would help prevent seizures. Later that afternoon, we left for vacation and you know some of the mishaps that happened from my last post. Also, being a mom trying to keep her eye on three kids in large crowds in foreign countries, it was a little stressful.

When we got home I had a few doctor appointments with various results which I will talk about next time. All I can say right now is that at my last doctor appointment yesterday when my laryngologist told me that my left vocal cord was looking a little paralyzed, I broke down (not to worry, I got a cold in Europe and lost my voice, consequently, traveling and having to talk for my job has taken its toll. Now it’s steroids and as much vocal rest as possible while working). Well, in attempt to be totally transparent, I confess, I was trying to take care of everything myself, trying to control every little situation which I really had and have no control over. I was tired and I forgot for a split second that God was on my side. What woke me up you ask? Well, after yesterday’s appointment I was driving back to work and it was pouring rain. I decided to drive up to my first account and pull a ‘Gene Kelly.’ You know, great singer-dancer-actor from the 1950’s…Singing in the Rain, An American in Paris, etc. Yup, I blasted the music, cracked my window and danced in the rain in the parking lot (remember I’m a dancer who studied dance from youth through college). I loved it! First off, you know I love music, but it got my heart pumping and my adrenaline going and that simple act of craziness for less than a minute made me laugh and realize the joy of living…God is with me through the mountains and the valleys. So as I enter my season of testing again (ultrasound, PET scan, MRI…), I go with a smile.

Dancing on the streets of Paris with a breakdance crew

Every day is a new day, try something crazy. Today I wear Revlon Just Bitten Kissable Gloss Stain in Cherish. These new gloss stains are pretty awesome. They go on smooth, have great color and unlike most lipstains I’ve tried, they are very moisturizing. I chose this color because it’s pretty for summer and works for all skintones (in my opinion). Also, I love the name, cherish every moment!

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Perspective

12 Jul

Alex peeking at the Eiffel Tower around the corner

I just got back from the vacation of a lifetime, almost a week in Paris, then a Mediterranean Cruise through France, Italy, and Spain. It was a memorable trip that we had saved for for awhile. My whole family went along with my mother-in-law. When we arrived in the Barcelona airport after 14 days of travel to finally return home, we were informed that our flight was cancelled and we would have to stay another day. My oldest son immediately replied, ‘of course it’s cancelled, everything that could go wrong, has.’ Funny enough, for a split second I had no idea why he said that, then I remembered the fine details which my mind had already blocked out.
First, our flight out was delayed an hour because as the pilot inspected our plane, some type of fluid went into his eye and he couldn’t fly so we had to wait for another pilot. When the new pilot arrived we were delayed another half an hour because an overhead bin got stuck and we had to wait for maintenance to fix it. After flying all night, we arrived in Paris at 7am were dropped off at an apartment complex with no instructions. At 8, we were able to reach the rental company who told us that we were at a different apartment than they had originally assigned (which they hadn’t informed the driver of) and our new one would not be ready until 4pm. With map in hand we had to find their office to leave our luggage until our place was ready; so, after flying all night we walked all day through downtown Paris. On the third day in Paris the water in our place shut down, yup, six people, no running water…no showers, flushing toilets, drinking water, etc; it didn’t start again for about a day and a half. In the meantime we decided to pay for a hotel room a block away just to take showers and brush our teeth (and it wasn’t cheap). Our last day in Paris I was robbed, this event I do remember. Fortunately, I had emptied my wallet and only had my drivers license, two credit cards and some cash…it was still traumatic. Leaving Paris for Barcelona we flew on a small European airline. Unexpectedly we had to pay for each of our bags and had no assigned seats. Anyhow, I’m sure there were other things that happened on our trip but they are now a distant memory. Literally, when my son said that statement, all I could remember that was bad was my wallet being stolen.

What I do remember is how beautiful and different everyplace was, all the history and the people. I remember our bike tour of Paris and was thankful that as we sped around the crowded city for three hours none of us got hit by a car and that none of us hit a pedestrian. I remember trying on lipstick (how could I resist) at a large Parisian department store and dancing in the streets with a group of breakdancers in front of a whole group of people. I remember being amazed by all the artwork in the Louvre, seeing Mona Lisa, and an original Monet. I remember being in awe of all the churches and the Roman ruins, the beauty of Gaudi architecture. It was incredible,  I also met some awesome people with great stories.
It’s perspective right? As we were funneled to different hotels because of the flight cancellation we met a couple who said everything went wrong on their vacation, lost luggage, cancelled flight, etc. the husband even said he wouldn’t leave the US again. How sad, no good memories? It’s all how you look at it. What could have been changed? What were you in control of? My vacation was awesome. We spent quality family time, we saw artwork and touched buildings we had only read about. The things that happened were only minor and we all walked away unscathed and richer for the experience. Life is a series of circumstances that we have to make the best of, so why not?

Today I wear Buxom Big and Healthy Lipstick in Barcelona. First, I LOVE this lipstick. It’s like a fat crayon but unlike some of the others, it’s MOISTURIZING and stays put!!  I chose Barcelona because it was one of the cities we went to that I loved but also because this color is candy red!  To Life!!

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I Ran

29 Apr

Yesterday I ran in a 5K race (3.1miles). This might seem insignificant to some, but for me it was a milestone, a miracle. My cancer surgeries and treatments have made it very difficult to participate in any type of cardiovascular activity because of my difficulty breathing. For those who don’t know, one of my vocal cords is paralyzed and because of scar tissue from three surgeries and external beam radiation along with swallowing I-131 radiation, my other vocal cord sits close to the other and moves a little slower. Picture drinking through a straw…lots of liquid. Now squeeze the straw so that it’s only open less than half the width, not much liquid can pass through and it’s that much more difficult to suck liquid in. That is how I breathe because my opening is less than half of a normal person’s. Without activity, I breathe just fine; but when I’m doing something active like running, I have to take at least twice as many breaths just to get air into my lungs. It’s a whole process of taking shorter faster breaths to keep going. Six months ago I could barely walk a mile on a treadmill without having to slow down and try to catch my breath, yesterday, I ran 3.1 miles. Now, I do have to say there were periods of walking, but a lot less than I thought. In fact, I finished 80th out of 134 in my age group (I pictured being last but finishing nonetheless). As I crossed the finish line, I could not help but break down and cry. It was a run for health, and faith, and for me, after four long years of fighting, it felt like a first step of trusting my body again, or as a quote I read on another cancer blog, ‘honoring a goal after a sea of disappointment’. I felt and still feel great! Of course I couldn’t do it alone. My friend Frances was there to encourage me and coach me through all the way. I knew this was something I wanted to do eventually and she helped lead me and keep me committed to this race (of course, there were times I wanted to back out).

After all the struggles with cancer and consequently my voice and my breathing, I can say that I can talk, sing, and run. Not without some struggles, but I feel blessed. Thank you to Frances and to all my friends and family that have helped and encouraged me. Thanks also to all of you who follow my lipstick journey!

Today I wear Make Up Forever Rouge Artist Natural in N47. It’s red and moisturizing….it is the red lipstick I was wearing when I crossed the finish line!

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Back to Work

2 Jan

Well, it’s a new year and I finally start back to work tomorrow. I have been off since December 16th so it’s been a L-O-N-G break (I saved my vacation days til the end). I think I’ll do it differently next year because being off so long makes me not want to go back tomorrow. I spent a ton of time with the kids, I was able to read alot and write alot, and of course, dive into an exercise regimen which will have to change tomorrow. I have worked most of my life. I was fourteen when I started working at Burger King (back in the early 80’s you could work 8 hours a week if you were at least 14 and 6 months) and I have not stopped since. I worked through high school and college, sometimes two jobs, and finally stopped to stay home with my kids after the third was born for 4 years (that was a special treat)!

Tomorrow I go back to a job, a career, which I actually fell into over 20 years ago. In college, I started as a music major and dance minor. Music is my love and passion and I loved every minute of it. I was in college productions and choirs and spent extra time in the dance studio or piano rehearsal rooms. Being the oldest child and first generation raised in America, I also wanted a ‘stable’ career so eventually I switched my major to Biomedical Science and Chemistry which obvoiusly led me into a different direction entirely. I thought I wanted to go to medical school but after anatomy and physiology I decided that was not for me. My junior year of college I landed an internship in a chemistry lab with a pharmaceutical company and I thought research was for me. Think about it, a musical theater actress, singer, dancer in a white lab coat looking in a microscope all day…NOT! The search was on but I did not want to waste the hard work I spent on my science degree. My mentor at the pharma company asked one day, ‘How about sales?’…The rest is history, sales is a great paid acting gig. I never thought I would be at it still, I only thought it was the job that was going to carry me through until I got my dream job whatever that would be, but 20+ years later, here I am. I never found my dream job, but I’m content. I heard a statistic once that said that only 2% of Americans TRULY love their jobs and more than half hate it. I must be in the middle, the people that like their job. Do I love it? no, but it has provided many opportunities and blessings along the way. Travel, insurance, a company car, and those are just the basics.  I have met many great people and some of my closest friends. We all are faced with different decisions throughout our life which leads us onto different paths, I sometimes still wonder what I’ll be when I grow up and I wonder how I got to where I am today. We can’t look back so we need to own up to our decisions with no regret and move forward in wisdom.

Happy Monday, Happy New Year again, and for those of us fortunate enough to have a job in this economy, congratulations, don’t let the job swallow you up. It’s just a job.

Tomorrow I will be wearing Kat Von D Painted Love Lipstick in Prayer which is a mauvey brown. It’s great for work because it’s a very conservative color. These lipticks in particular are both creamy and long lasting (I have a few colors). Also, I always start my work day with a prayer for a good day…I know it helps!

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Truth?

5 Dec

Last week my husband and I were out to lunch when I overheard the woman behind us tell her friend, “Yes, it’s breast cancer, but my doctor said it’s the best type and there will be no problems getting rid of it.”  I leaned into my husband and asked, “Should I tell her the truth? Should I tell her to get a second opinion from a more honest physician?”  He simply said that if she needs to hear that to have more hope, than it’s ok…is it?  When I started my cancer path everyone told me thyroid cancer was the best to have, easy fix. Obviously for me, it wasn’t and four years later, I still fight. After my first surgery, my surgeon was brutally honest about what he saw and what my prognosis was. For me, it was a hard blow, but I appreciated his honesty. I wanted to know EXACTLY what happened to prepare for what lied ahead.

Is it ok to only tell partial truth to avoid hurt or pain? Is there a difference between partial truth and partial lie or what we call a ‘white lie’ ? It’s such a gray area, of course a lie is a lie. I have three kids and my youngest who is nine wrote a letter to Santa yesterday as part of a project in his class for a local newspaper.  In the letter he said that some of the kids didn’t believe in Santa, but he still did. After I read it he looked at me and asked, “Santa’s real right? Those kids are crazy,” (That’s right, my older kids have kept the secret). Ahhh, to break his heart or to keep the magic alive, partial truth/partial lie? When my older two got to this question I always smiled and said, “If you don’t believe, you won’t receive,” which has stopped further questioning to this day. I thought about it,  and just said that of course Santa is real, but he might not be who or what you think. He represents joy and happiness to millions of kids around the world, he’s part of the magic of Christmas; and then I ended with the same thing I said to the other kids. That sufficed for now, I think he probably knows….

I believe honesty and truth will always set you free. In a time of universal deceit, telling the truth is a revolutionary act. –George Orwell

Today I wear Josie Maran lipgloss in Brilliance, a sheer shimmering light pink. I think I had a similar color last week, but I’m in the mood for gloss and shimmer. This gloss smells like caramel which is awesome and it’s all natural.  I also love the name…I hope that telling the truth adds some brilliance and shine to the personality!

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Laughter and Thanksgiving

21 Nov

I can’t believe it is almost Thanksgiving.  This year has flown by and time seems to move faster and faster. As I reflect on what I’m specifically thankful for this year, there are so many things. I’m thankful that this year I did not need any surgery or treatment for cancer (first year since2008). I’m thankful for my voice and my breathing which slowly gets better with each day. I’m thankful for my awesome family and friends who have been with me throughout.  I’m thankful for my incredible medical staff who are now my friends.  I’m thankful for my job which provides financial blessing for my family. The list goes on and on.

My funny kids

One of the things I’m most thankful for is the laughter in my family that carries us through.  When you’re a parent, you always worry about your kids.  When you’re a parent with cancer, you worry even more.  My kids have been dealing with this since I found a lump in December of 2007; the ups and downs, the surgeries, radiation, etc. I always hope and pray that they are ok, that their childhood has not been tainted by fear or anxiety.  I do know, as we sat around and watched Malcolm in the Middle the other night, we had not lost the laughter.  We laugh about stupid stuff like burping and farting, I make up raps and songs, my kids and I reenact scenes from shows and try to speak in different accents, I’m so happy we did not lose that. Bill Cosby says, “Through humor, you can soften some of the worst blows that life delivers. And once you find laughter, no matter how painful your situation might be, you can survive it. ”  I find this to be so true. Looking back at this incredible journey, there was lots to laugh about despite the difficulties. Like the time I was trying to do the grout on the kitchen backsplash with a drain coming out of my neck, or when I couldn’t speak and life was a huge game of charades, the snapping and motions I came up with…truly laughable.

Now when I laugh it’s actually a little difficult.  Because my vocal cords are so close together and because one of them is paralyzed, when I laugh really hard, I literally can’t breath.  I have to force myself to try to stop laughing to take a breath…which then makes everyone (including me) laugh even harder.  It’s really too much.  Life is a funny journey and if you don’t laugh about it, you’ll cry too much.  Exercise those smile muscles, smiling eyes are beautiful.

Since it is Thanksgiving and I am truly a lipstick lover, I am not picking one color this week.  I am treating myself to the Bobbi Brown 20th Anniversary Lip Palette.  It’s 20 beautiful colors in one palette.  I have been a lipstick fanatic for about 20 years and I believe I have owned the ten original Bobbi Brown lip colors (which are the top ten colors in the palette).  Happy Thanksgiving, don’t forget to laugh!

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Nature vs. Nurture

8 Nov

I have had a crazy, stressful week this past week.  I eluded to a certain situation in my last blog and this week everything exploded and I was caught in the firestorm.  Everything revolved around a single person and their actions which finally caught up to them.  I’ve always wondered if bad choices really ever caught up to some people (because some seem to get away with a lot more than others), well now I know, sooner or later they do.  It was interesting watching everything unfold and because I’m always curious about people’s stories, I wondered what this person’s story was that made him who he was today.  It raises the question. ‘nature or nurture’?  Did God make us this way or did our environment create us into who we are today.  I say both.  One of my husband’s favorite phrases when he’s on a stubborn streak is, ” That’s how God made me and no one can change that.”  I believe that to an extent but I also believe that environment can soften and mold us.  I can only imagine the type of person he would’ve been had his parents not reigned him in. I believe we are all created with unique personalities and temperaments but I think our families, friends, and the environment we are raised in mold us too; and then of course, the different choices we make throughout our lifetime direct us one way or another.

People are funny and interesting and knowing people’s stories not only help you understand them more, but accept them and love them too.  I’m not saying that you have to accept their decisions or how they treat you, but it gives you a better handle on things in terms of ‘being the change’ for people (even if it means walking away).  I’m hoping this event may precipitate a change for the better but who knows.  I read a quote which says, “Not everything that is faced can be changed, but nothing can be changed until it is faced”-J. Baldwin.  I understand we need to face our challenges or challenging people head on whether change happens or not.  Maybe it’s just to plant the seed or to be a part of that ‘nurture’. We all have a voice and I’m so thankful after cancer that I still have mine.  We need to use it not only to spark change but to be a blessing to others.

This week I wear Bobbi Brown Rich Lip Color in Crimson.  It’s a rich, deep, wine-red, color and the newest to my ever expanding collection.  It’s great for the holidays and red is always that reminder to for me to live life to the fullest…wear it like you mean it!

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