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Tag Archives: friends

Sick

13 Jun
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Me and my baby brother recently 

I have heard more times than not that I don’t look sick. Believe me, it’s a great compliment. Over the past week or two there have been some significant events happen with people who don’t look sick. The shocking suicides of Kate Spade and Anthony Bourdain, and the sudden unexpected passing of my dental hygienist who was a young, 39 year old mom of 2. My kids and I had known and been going to ‘S’ as our hygienist for probably 10 years so the news came as quite a shock for all of us. She and I went to the same gym so I saw her every so often and what looked like a healthy young woman was suddenly gone. She didn’t look sick.

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2010, week 6 of radiation. Minus 30 pounds, burnt inside. Do I look sick?

I would venture to say that 99.99% of everyone has some type of ‘ailment’ they struggle with on the inside whether it’s anxiety, insecurities, mental health, or actual physical health that the world doesn’t see from the outside (or social media) appearance. I spoke to a coworker whose husband has suffered from cancer awhile and doesn’t always ‘look’ ill and told her the biggest thing to remember in terms of being a caregiver for someone with a chronic illness is that we generally function under 100% all the time. Meaning, our 100% is your 85% so I told her if he’s complaining that he’s not feeling well to have compassion because he’s really not feeling well and has actually fallen below that 85% which is his norm.  For me, I have compromised breathing…all.the.time., I can never run a marathon let alone run 5 minutes straight on a treadmill because I simply can’t breathe and it takes a while to catch my breath, my left arm and hand have been numb (and getting worse) for the past few years which means I can’t play the piano anymore or confidently hold a cup of coffee with my left hand, or go through a drive thru without reaching over with my right hand because I’m not confident with my left, and when I say I’m tired, I’m exhausted and of course there are other things I struggle with regularly. Oh and I have massive amounts of hair falling out from my radiation experiment from last April. So my feeling 100% good is really about equivalent to everyone else’s 85%. I keep a full time job, try to be at all my kids’ activities, and try to keep a smile on my face. It’s how I live and you can’t see that I’m at 85%.

What does that mean for all of us? We need to be more gentle with each other. We need to see each other with compassionate eyes and know that beyond the exterior smiles, Facebook posts, beautiful instagram pics, etc there are stories of pain, illness, suffering, insecurities, and internal struggles that plague all of us. ‘The more beauty we find in someone else’s journey, the less we’ll want to compare it then to our own.’~Bob Goff. We need to love more and frankly as a Christian I am sick of the Christians acting like judge and jury (that’s a whole other blog). Jesus came to show us how to love and show grace and mercy and the world needs plenty more of that. Love God, love others no matter what.

I have another scan coming up in a week and I’m a little scared. I read this quote today, ‘Courage doesn’t always roar. Sometimes courage is the quiet voice at the end of the day saying I will try again tomorrow.’~Mary Anne Radmacher. Despite my apprehension I have trust in the One who carries my burdens on His shoulders so in my quiet voice I say thank you for another day. I’ll be ok. I hope I never really look sick but let’s all be aware that every single person is dealing with something we don’t see. Be kind. Be aware. Be loving.

She made broken look beautiful and strong look invincible. She walked with the universe on her shoulders and made it look like a pair of wings.’~Ariana Dancu

Today I wear Tom Ford lipstick in Violet Fatale. This may be the most expensive lipstick I own. These lipsticks are pretty amazing. I didn’t like them at first becuause I thought they were a little dry but recently I’ve come to appreciate the semi-moisturizing but long wearing power of these lipsticks. I chose this color because it’s  bright but not too crazy and fun for summer! Cheers!

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Superhero

30 Apr

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What a long week. To recap, I was given a tracer dose of radiation to see if any of my metastatic nodules would show uptake because if they did then another dose of RAI May work. Nothing showed up after the tracer dose. At that point my doctor told me that she would like to try a challenge therapeutic dose because the tracer is so small and my nodules were small and since I had distant metastasis, a higher dose may be necessary. After talking about possible downside to more radiation, which she assured me was minimal in my case, she said that there was a 20% chance it could work to get rid of my cancer. I took the 20% then sat in isolation in my room for 5 days.

I was deemed safe to the public by Saturday and of course the first thing my kids wanted to do was see the new Avengers movie (don’t worry, no spoilers and I waited until Sunday to be extra safe). I had shared with a good friend that after drinking the radiation I sort of felt like a superhero. My 4th time battling cancer and here I was, radioactive; sweating radiation, crying radiation, etc…in a strange way I felt (and still feel) invincible like a superhero, so at the very least I wanted to take my kids to watch my partners fight in the Avengers movie.

Well, after a long week/month I’m recovering and like the superheroes at the end of every hero movie, feel a little beat up but fought my hardest. I found out a little earlier that unfortunately I will not be part of the 20% that was cured and after the initial shock of disappointment I’m ok. I am exactly where I was a month ago. Stable. A month ago I didn’t even have the 20% probability option so yes, I’m totally ok. Here’s what else…I love and trust God and His plan even more. At church Sunday our pastor said, ‘In our storms img_2258God provides people.’ I saw, felt, received the love from so many people and truly felt God’s peace through all the prayers. I have a husband who took the week off and never left my side; has been at every appointment and was by my bedroom door all the time while I was in isolation with food, smiles, conversation, or whatever else I needed. I could not be more grateful for the life I have and the people in it and I’M STILL HERE! God is so amazingly good! From Nichole Nordeman’s song Sound of Surviving : This is sound of surviving, this is my farewell to fear. This is my whole heart deciding I’m still here and I’m not not done fighting. This is the sound of surviving.

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My gorgeous Superhero ring along with my Lipstick Strong bracelet my son had made!

Saturday I got to meet a jewelry designer who had a pop up shop at a local boutique. I had purchased a couple pieces from her collection before and LOVE her stuff so I went to meet her. She was fantastic and kind and showed me a ring I had to have. In my superhero mode this ring reminded me of Wonder Woman who she said was the actual inspiration for the design! I bought it and LOVE it and it’s designer as well. Check her and her jewelry out at anujatolia.com.

Thank you for your support and walking with me in my lipstick journey. Today I still wear red lipstick. Today it’s Aveda Nourish-mint smoothing lip color in Cherrybud which just seems appropriate for Michigan spring. Cheers!

The Wall

22 Apr

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I hit my wall this week. After being on my special diet and off my medication almost 2 weeks my body is done wanting to move around. I basically feel like I’m walking around with the flu; achy, uncomfortable, slow moving, add to that an excruciating migraine last Wednesday, menopausal type hot flashes, and a consistent low grade headache that wakes me up every morning and stays there all day, well, I’m tired but so ready to get this week started. Here’s the lowdown on what’s happening this week. Basically I take a tracer dose of radiation on Monday and they take some measurements, measure/scan on Tuesday, measure/scan on Wednesday, then if my body shows any uptake and if my measurements match with what I need to kill the tumors, I get that dose of radiation to drink, yes drink, then I’m in isolation awhile. This is the typical treatment for thyroid cancer. What makes this a little complicated for me is that I’ve had this treatment before with a high dose the first time I got cancer, radiation, then external beam radiation the 3rd time I got cancer, more radiation, and this time my cancer is now in my lungs. FYI, every human body can only tolerate so much radiation in a lifetime before it causes some other bad things to happen so, the calculation has to be correct. Also, my body has to show uptake in the testing phase or this type of therapy will not even work for me and we’re back to watch and wait which honestly is not a terrible place to be.

For the only courage worth calling courage must necessarily mean that the soul passes a breaking point and does not break.’~ G.K. Chesterton

Can a man still be brave if he’s afraid?’ That is the only time a man can be brave,’ his father told him.’~George RR Martin

The first quote I heard from church this morning and it really hit home~ past the breaking point but not breaking. I love that. Here’s the thing, in my current exhausted and highly emotional state I am so grateful. One thing about being sick is you get to see the best of people first hand. A couple days ago a friend of mine researched every ingredient I could and could not have right now (which is quite extensive) and made me a ‘key lime’ pie among other things. It required so much research on her part and it was incredible. I have been on the receiving end of many prayers, texts and messages of encouragement, and just about every kindness out there, some even shocking but ALL appreciated. Last weekend I got to visit my son and his friends who campaigned and raised money in honor of me at their college Relay for Life. He had bracelets made and they all signed a giant card. img_2201img_2202There are so many great people. Another thing about having to slow down is you get to really observe and feel every single thing you’re surrounded by in your life; the people, your home, the plants, the sun, the rain, (the snow).I’ve been in this place before but sometimes life gets crazy and rushed again and you forget. Always take time to slow down and stop to literally smell the roses. I am so grateful for my life and everyone in it even all of you! Last week I got an amazing award by Feedspot, see the article here (or paste to your browser~ https://blog.feedspot.com/thyroid_cancer_blogs/). They ranked me in the top 15 websites/blogs for 2018 to follow on the web for thyroid cancer. I’m stunned, amazed, and again grateful. Thank you to all my readers!facetune_22-04-2018-17-18-39

This week I will be wearing Almay Smart Shade Butter Kiss Lipstick in Red-Medium. I LOVE this moisturizing, buttery lipstick. It’s a cross between a lip balm and a lipstick and does feel great on your lips. I chose this color because it’s red and I’m ready to tackle this week! Cheers!

And other thoughts…

11 Feb

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You are a better Christian if you go to church every Sunday…and other statements that I ponder. I’m not sure which I have more on a moment to moment basis, thoughts or emotions. I can run from joy and happiness to depressed and anxious and back to joy in less than 30 seconds and the same goes with the various topics that pop into my mind in that amount of time. I can go from my cancer and what dreams and goals I still have, to the kids’ schedule for the week, to ‘I need a piece of candy’ in no time flat. Anyhow, I mentioned church because ever since I got the news that my cancer was back last July I haven’t really felt like going to church. People have asked if I am angry at God or have just assumed I’m maybe running away from my faith for now. No and no. In fact, I have never felt closer to God and felt more loved by Him. I’m not avoiding church, I still go, but sometimes I just don’t really feel like it. I believe there are seasons to our faith; seasons of discovery but also seasons when solitude is necessary and maybe that is where I am. I think also during this time when I’m trying to navigate my feelings of living with cancer I’m not sure I can handle that much ‘religious cheerleading’ (poor description and probably offensive but I can’t really describe it any other way). Bottom line, my faith has to do with me and God and we talk all the time. I know I couldn’t do cancer without Him and I see evidence of His love and grace daily from the words I read in the bible to the kindness and love I receive from friends and even strangers whether that’s in a church building or not. He gives me the peace to move forward and trust that everything and everyone will be ok.

img_1326Thought 2. I have heard many many times that I don’t look sick. It’s true. My cancer’s stable so in the meantime I work, go out with friends, go to the kids’ sporting activities and events, ‘normal’ life, and I look no different with Stage 4 cancer now than I did July 6, 2017 (the day before I found out my cancer was back). I don’t ever take offense to the comment, I’m truly grateful because who wants to look sick? Part of my thought process though is that none of us look sick but most of us are. The Facebook and Instagram pictures are great but don’t show sadness, depression, arguments, adversity, bullying, cruelty, or any of the things normal people struggle with every single day. REAL. LIFE. All of us are living, breathing novels with incredible stories and beautiful covers but we don’t see each others’ ripped and tear-stained pages, highlights, the worn out corners, etc…none of us really look sick.

Last thought for today…contrary to social media and what’s most highlighted on the news, people are really great. I am so blown away by the beauty and kindness and generosity of people. In fact, during this time it’s people and my interactions that have been magical and have given me a sense of wonder. I believe we all want the same thing, to know we’re loved and to know we matter. If we can give that much to another person the return is crazy. Being deeply loved by someone gives you strength, img_7380while loving someone deeply gives you courage. ~Lao Tzu  Courage and strength, all of us need both. I read this quote from an unknown author and I really loved it, ‘Sometimes when you’re in a dark place, you think you’ve been buried; but actually you’ve been planted.’ HOW AWESOME IS THAT? Planted for rebirth, planted for new, planted for breakthrough. I love it.

Today I wear NYX Butter Gloss in Red Velvet. I own several colors of this gloss for a few reasons; moisturizing, great color, cheap. If you’re afraid to dive in and wear a bold red lip color you can start with this. This gloss gives just enough color without being scary and it feels great too. I chose this color because it’s red and I do love a good Red Velvet cake! Cheers!

Still Waiting…

21 Jan

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I am still waiting. Yup, that’s right…I go from scanxiety to results-anxiety and it isn’t fun. I have to say that in my whole, almost 10 year history of PET scans and CT scans this is the longest I have waited for results. Typically I have gotten the results by the end of the next day, even if the next day was a Saturday but now it’s been 3 LONG days. The mind is a funny thing, it has the ability to take you down a bad path and your body actually feels it. In the past 3 days my thoughts have run the gamut from best case scenario to the worst and the longer I wait the more my mind and thoughts rollercoaster. It’s nuts. I have desperately been trying to occupy my mind on other things but it always comes back to the silence and the wondering. This weekend I have learned how to play the ukelele, have looked up different recipes in an attempt to meal plan for the week, I’ve read half of a book I just started, we went out with friends, I’ve been to the gym, and here I sit, tired from not sleeping well and staring at my phone with hopes that my doctor will call. I know, I know, I have no control over when those results will be done. Yeesh.

This past week I listened to Rob Bell (I know he’s controversial but he’s still interesting and makes you think) being interviewed on a podcast. He spoke about the time he had a concussion and could not process anything except the ‘now’. He said in that state of mind everything ‘now’ was beautiful, to the point that when his kids entered the room he would cry. That is mostly how I feel. Historically I’ve never really been a person who looks too far ahead; I never bought sale clothes at the end of the season for the following year, or clearance Christmas decor for the following year, etc. My reason would always be that I didn’t know where I’d be the following year, or what I’d be doing, or regarding clothes, what size I’d be the following year. Welp, cancer has magnified this trait of mine…everything is NOW. When I look at my kids or sometimes even think about them I cry. When there’s a beautiful sky, I tear up. Shoot, I can look at my dog and burst into tears at how beautiful and loving he is. I was speaking img_1191to a coworker a little about my grief and anxiety (which I really hadn’t felt to this extreme before) and he asked what made this time so different than the last few rounds with cancer. Outside the obvious ‘this time it’s stage 4’ I realized that I’m more anxious because right now my life is great; I have an amazing husband that brings me so much joy and laughter, my kids are great, I have great friends, I work with amazing people at a great company, everything is good and fun and peaceful and all I want is more time to rest in this good. I just want to rest here awhile…in the good. So I wait here in the good and (semi)patiently continue to trust in God’s plan.

‘I believe that a trusting attitude and a patient attitude go hand in hand. You see, when you let go and learn to trust God, it releases joy in your life. And when you trust God, you’re able to be more patient. Patience is not just about waiting for something… it’s about how you wait, or your attitude while waiting.’~Joyce Meyer

Today I wear Sephora Collection Lipstick in Yum Yum. I wanted to try one of these lipsticks by Sephora because of the packaging, it helps that they’re fairly inexpensive. This is a good color for everyday and I love the name..yum yum (plus it has chocolate chip cookies on the package). Cheers!

Blessings and Battles

7 Jan

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Rick Warren says that he used to think that the Christian life was a succession of battles and blessings but now he thinks of life as being on two tracks. At any given time there are usually blessings, but also battles to face (from bibleinoneyear.org).

There’s a lot of grief to process when you have cancer. I honestly don’t remember the feelings I had when I had cancer the first, second, or third times…I guess it’s like giving birth; you don’t really remember the pain until it’s happening again. All I can speak to is now and now my cancer is Stage 4. Ever since I declared joy as my word for 2018 I’ve been processing and working through all of the grief and sadness I’m feeling, mostly if not all, revolving around lost time. This past week I grieved my voice again. I have not over the years post cancer really thought too much about the fact that my voice was altered from a paralyzed vocal cord after my first cancer surgery, but the fact that I no longer do something I was able to do so well and was so passionate about for most of my life is sad; church, weddings, radio jingles, guest appearances, and even a Broadway stage one time…gone. Imagine something you feel was your special gift, your love and your passion, but you really can’t do it anymore, it’s a little heartbreaking. Then there’s the years of trying to please different people that in the end could never be pleased, the years of trying to be something for someone while giving up pieces of yourself, time wasted. Then there’s all this time looking at my life wondering if there was/is more I could do for my kids, my social circles, for humanity in general. I grieve and I fear that I have wasted so much time. I guess I’m a little angry too because I feel like I’m always battling my body. Maybe it’s normal. ‘Grief does not change you,… It reveals you.~ John Greenannabeach

I read what Rick Warren said about life being a series of battles and blessings, or I should say blessings with battles interspersed, and it really resonated with me. I also met with an incredibly wise woman who told me to be gentle with myself and to sit and think about all of the blessings that have come along despite the trials. I do know that my past has made me stronger and wiser and cancer has given me hyper-awareness of time and being intentional with time and relationships. I am still sad about lost time but it’s ok because we bend and grow through our experiences. I am a ‘feeler’ according to Myers-Briggs personality type and with cancer, my ‘feeler’ personality is magnified. Hurt is doubled, pain is doubled, but so is joy and happiness. When one of my kids says something hurtful it’s hard to bounce back because my hurt is magnified, I know my daughter is graduating soon and leaving for college and I think in normal circumstances I’d be sad, but now that sadness is magnified. It’s so strange. Blessings? Too many to count but with any health issue the battle part is always in your face. This week I shed a lot of tears but I still found that joy. I decided grief and tears are ok.

‘There is a sacredness in tears. They are not the mark of weakness, but of power. They speak more eloquently than ten thousand tongues. They are the messengers of overwhelming grief, of deep contrition, and of unspeakable love’~Washington Irving

‘Only people who are capable of loving strongly can also suffer great sorrow, but this same necessity of loving serves to counteract their grief and heals them.’~Leo Tolstoy

Today I wear Urban Decay Vice lipstick in Backdoor which is a really cool metallic brown. There are a ton of colors and finishes available in this lipstick line and most are pretty moisturizing. I chose this color because I felt like I needed a little sparkle! Cheers!

Can We Change?

14 Nov

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Recently I had a conversation with one of my coworkers about personality types and whether people could change or if we just are who we are; a deep topic but spurred on by another conversation I had with my boss. We are in sales so we talked about our specific personality types (defined by Myers-Briggs, Enneagram, etc) and how they relate to selling style and if one may be better than the other. In the end my coworker and I decided that we were created a certain way at our core and there are enhancements we can make to our specific types like being a little more aggressive or being a little more extroverted, but at our specific personality type stays the same. There’s a saying ‘fake it til you make it,’ can you fake kindness? Then there’s ‘this is how God made me.’ Is it? Is there a ‘bad’ personality type? I don’t believe there’s a bad type but maybe life experiences, disappointments, and our own insecurities make us ‘hard’?  Can we soften? Can people change? All tough questions.

I read this today and it really resonated with me: You are holding a cup of coffee when someone comes along and bumps into you or shakes your arm, making you spill your coffee everywhere.Why did you spill the coffee? ‘Well because someone bumped into me, of course!’Wrong answer. You spilled the coffee because there was coffee in your cup. Had there been tea in the cup, you would have spilled tea.*Whatever is inside the cup, is what will spill out.*Therefore, when life comes along and shakes you (which WILL happen), whatever is inside you will come out. It’s easy to fake it, until you get rattled.*So we have to ask ourselves… “what’s in my cup?” When life or business gets tough, what spills over? Joy, gratefulness, peace and humility? Or anger, bitterness, harsh words and impulsive reactions? Whoa. When faced with adversity who are you because that is when your true thoughts and heart show. I have been around people who have raged and placed blame outside of themselves in troubling times but who does that hurt? It shows a core of anger and insecurity and the ‘ugly’ that rolls off their tongues is truly the ‘ugly’ that’s in their hearts. Matt 15:18 ‘But the things that come out of a person’s mouth come from the heart..’ Can they change? Nothing is impossible with God but first they must look in the mirror. I am no saint but with all the challenges life has thrown over the years all I can do is fall to my knees, cry out for peace, and be grateful for another day. Maybe that’s what it’s all about. It doesn’t depend on personality type because at all of our cores is love and the need to feel loved. Maybe it’s all about control. We go through so much in life; illness, hurt, broken relationships, etc and maybe we become hardened because those are the things we cannot control. So here’s what must change…not our personality type, but our need to control every circumstance or person, or in other words, our need to be God. Just my theory. ‘All is not what it is-it is always more. What seems like your story is but a line in the whole story’~Ann Voskamp.

This weekend I was blessed by an img_7380-1unbelievable surprise. My son’s recreational basketball team comprised of most of his closest friends surprised me by wearing t-shirts especially made (by the moms) in support of  my cancer journey. I cry thinking about and looking at the pictures. The beautiful thing about releasing control over whatever situation you may be in is that it frees your heart to love more, to be more authentic and to be kind. You get to be more of your authentic self because you also release the need to control people and reactions and crap in general and you get to live the golden rule ‘Do unto others as you would have them do unto you.’~Matt 7:12. What you put out into the world comes back 10-fold and those shirts on those boys created by the moms was a HUGE 10-fold bounce back. My grateful heart is once again mush.

img_5039-1Today’s lipstick is YSL Rouge Pur Couture Dazzling Lights Edition Lipstick in Le Rouge which is blood red. These lipsticks are a little pricey but super moisturizing. For whatever reason the lipstick just feels luxurious on your lips but I’m not gonna lie, the color slips off my lips pretty quickly. Never the less, if you want to splurge, YSL and Tom Ford are the two brands that are splurge-worthy. I chose this color because it’s red and a great color for the holidays! Cheers!

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