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Tag Archives: lipstick journey

Alive

20 May

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One day you and I will die, but before that day comes, let us live’~A. Arthur

Something happened after going through last month’s radiation experiment. When it was all said and done and when I found it didn’t work, I had overwhelming peace about everything. Maybe it’s all the prayers or just having simple faith and trust in God’s plan, but I have felt a complete shift in my mind. Since then, some of the weight of living with cancer has lifted off my shoulders and it’s been great. I think after the radiation I finally felt like I had done all I could in my power and now I could just let it go and truly leave it to the doctors and God. At church today we talked about defining moments and how during difficult times we want God to pull us out but sometimes He just gives us the strength to walk through and we just have to trust. Since the beginning of this crazy beautiful cancer journey in 2008 trust has been the theme; trusting God with HIS plan not MY plan. It has been 10 months since I first found out I had metastatic cancer. For 10 months my cancer tumors have been stable (not growing too quickly) and I am so grateful. Over the past 10 months I have shed tears and spent too much time contemplating the what ifs, but I’m done with that for now.  I’m alive, I feel pretty good, and I have today. I know I will still have ‘scanxiety’ at CT/PET scan time but…today’s good enough, no, today is great.

This past week I got to sing again and it’s been awhile. After losing function in a vocal cord and now having a little difficulty breathing my confidence level has waned but I was grateful for the img_2409opportunity. I picked a song with a lot of meaning to me along with lyrics that expressed exactly how I feel right now, needless to say, I got SUPER emotional. You can watch the performance here…'(https://youtu.be/mj9P47mkQ6wSo many things I thought would bring me happiness. Some dreams that are reality today. Such an irony the things that mean the most to me, are the memories I’ve made along the way. So if there’s anything I’ve learned from this journey I am on, simple truth will keep you going simple love will keep you strong. ‘Cause there are questions without answers, flames that never die, heartaches we go through are often blessings in disguise. Thank you lord, how could I ask for more?

I’m living with cancer but I’m alive. I don’t look sick so most people I run into would never know. I admit however that when I run into the ‘me’ monsters I do use it to shut them down. Are you familiar with the comedian Brian Regan and the skit ‘I walked on the moon’? It’s hilarious, you can watch it here (https://youtu.be/qBJ6yptGqm4). So yes, I’ve said, ‘Yeah? Well I have Stage 4 metastatic cancer.’ That usually stops people in their tracks. Sorry. We all have stuff we are dealing with which makes our lives richer. Now what? I’m alive. Don’t feel sorry for me, don’t look at me like I’m dying, and don’t assume I just want to stay home and rest (although that’s a pretty good assumption most of the time). Do keep praying, do ask questions (I’m ok talking about cancer and how things are going), and do buy me presents…hahaha. I love my life.

The purpose of life, after all, is to live it, to taste experience to the utmost, to reach out eagerly and without fear for newer and richer experience.~Eleanor Roosevelt

Just breathing isn’t living.~Eleanor H. Porter <<<——————-#truth!

Today I wear Fenty Gloss Bomb Universal Lip Luminizer. I’ve written about this before, I love it. It’s shiny, not sticky, and has a good amount of shimmer to it. It’s a warm gold which looks great on everyone and can be used alone or on top of whatever color. I chose it because everyone could use a little glitter in their day! Cheers!

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I am a mom

11 May

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Mother’s day is around the corner and I am a mom. I am a mom with cancer. What does that mean on mother’s day for me? How have I changed?  This is hard to talk about. The first time I got cancer my kids were young and all I could think of was to fight for them. I have to say, what lessened the urgency or ‘scare’ from the word cancer for me was that I had thyroid cancer which I read about and was told even by my doctors that it was the easiest and best cancer to have because of the high cure rate. When things turned out a little more complicated after the first surgery I was scared and yes, I cried…a lot. My img_1886kids were only 5, 7, and 10 at the time and I wasn’t ready to leave them (are we ever ready to leave them?). I fought, I cried, I prayed, I survived and for the next 2 years cancer came back again twice but same thing, I fought, I cried, I prayed, and throughout those years and the surgeries, and the treatments, I tried to make their lives as normal as possible. I continued to work, I volunteered at their school, I brought cupcakes and donuts to their classes for their birthdays. I rarely missed anything.

Today, 10 years later, cancer is back and it decided to spread. My kids are older, facetune_01-04-2018-18-00-11one is in college, one is headed there next fall, and the youngest is in high school. I’m older, teens are more difficult, life is rarely quiet but I fight, I cry, I pray. Life is funny because there are always things you don’t want to miss. When the kids were younger and I got cancer all I wanted was more time to get them through high school. Now that they’re older I want to see them become adults, get married, maybe meet my grandkids, I want to see them fly and flourish and know that they’ll be ok.

I am a mom. Like all moms we have img_1634pieces of our hearts walking and breathing outside our bodies. We feel their hurts, we cry when they cry, we’re happy when they’re happy. We worry, we discipline, we direct, we pray, we love, we do the best we can. There are no perfect people or perfect moms but we can love and we can teach them to love. I am a mom with cancer. I may not meet the grandkids but I am planning to. I want to see them make good decisions but I can’t control them. I want them to know that my home is a safe place and that there is love waiting for them here. My love language is time and unfortunately with cancer time is what is threatened the most so that makes my heart hurt a little. Here’s the twist, they’re all older and preparing and wanting to launch so while I try to grasp tighter and grab more moments, they are at the age of friends and freedom, and adulthood, how’s that for crappy timing…but I guess there isn’t really a good time to get sick. So that’s what’s a little different with cancer. I hug a little longer, and grasp a little tighter even though they’re older and they grasp for freedom. I stare at them more because I want to notice and memorize and soak in every nuance of their faces. When they ask to grab coffee or a movie or dinner, I jump at the chance because it’s more time. I don’t get too wound up over dumb things and I let go of simple annoyances quickly because I mainly see things in ‘big picture’ now. I listen more intently and I constantly tell them how much I love them and I fight harder, I cry harder, and I pray harder. To all the moms, stepmoms, aunts, mother figures, teachers, mentors and the village helping raise our children, Happy Mother’s Day.

Maybe every year needs one day to live wide awake to celebrate that we get to call these people ours, that we get to be the one who gets seconds and minutes and hours and days and maybe even years to witness the wonder of them…We get the gift to love our people-and what if we don’t get the wonder of another? Maybe getting to love is getting the best gift of all.~Ann Voskamp

Today I wear MAC Liptensity Lipstick in Habanero. I was looking for something a little bright after my radiation treatment. I needed a little pick me up and this color did it! I love the texture of this lipstick formula and the color is awesome. Habanero is a bright orange/red and I love it. Like the name, this color is spicy and fun! Cheers!

Superhero

30 Apr

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What a long week. To recap, I was given a tracer dose of radiation to see if any of my metastatic nodules would show uptake because if they did then another dose of RAI May work. Nothing showed up after the tracer dose. At that point my doctor told me that she would like to try a challenge therapeutic dose because the tracer is so small and my nodules were small and since I had distant metastasis, a higher dose may be necessary. After talking about possible downside to more radiation, which she assured me was minimal in my case, she said that there was a 20% chance it could work to get rid of my cancer. I took the 20% then sat in isolation in my room for 5 days.

I was deemed safe to the public by Saturday and of course the first thing my kids wanted to do was see the new Avengers movie (don’t worry, no spoilers and I waited until Sunday to be extra safe). I had shared with a good friend that after drinking the radiation I sort of felt like a superhero. My 4th time battling cancer and here I was, radioactive; sweating radiation, crying radiation, etc…in a strange way I felt (and still feel) invincible like a superhero, so at the very least I wanted to take my kids to watch my partners fight in the Avengers movie.

Well, after a long week/month I’m recovering and like the superheroes at the end of every hero movie, feel a little beat up but fought my hardest. I found out a little earlier that unfortunately I will not be part of the 20% that was cured and after the initial shock of disappointment I’m ok. I am exactly where I was a month ago. Stable. A month ago I didn’t even have the 20% probability option so yes, I’m totally ok. Here’s what else…I love and trust God and His plan even more. At church Sunday our pastor said, ‘In our storms img_2258God provides people.’ I saw, felt, received the love from so many people and truly felt God’s peace through all the prayers. I have a husband who took the week off and never left my side; has been at every appointment and was by my bedroom door all the time while I was in isolation with food, smiles, conversation, or whatever else I needed. I could not be more grateful for the life I have and the people in it and I’M STILL HERE! God is so amazingly good! From Nichole Nordeman’s song Sound of Surviving : This is sound of surviving, this is my farewell to fear. This is my whole heart deciding I’m still here and I’m not not done fighting. This is the sound of surviving.

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My gorgeous Superhero ring along with my Lipstick Strong bracelet my son had made!

Saturday I got to meet a jewelry designer who had a pop up shop at a local boutique. I had purchased a couple pieces from her collection before and LOVE her stuff so I went to meet her. She was fantastic and kind and showed me a ring I had to have. In my superhero mode this ring reminded me of Wonder Woman who she said was the actual inspiration for the design! I bought it and LOVE it and it’s designer as well. Check her and her jewelry out at anujatolia.com.

Thank you for your support and walking with me in my lipstick journey. Today I still wear red lipstick. Today it’s Aveda Nourish-mint smoothing lip color in Cherrybud which just seems appropriate for Michigan spring. Cheers!

Trusting Through the Storm

11 Apr

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I’m ready, sort of. I am now in prep mode to start my radiation testing/possible treatment in a couple weeks; no meds, strict diet, I’m tired and it’s only day 3. I shouldn’t be tired yet but I am going through major caffeine withdrawal. Since I can’t have cream with my coffee, no cream=no coffee, oh well. I’m a little foggy right now because, hello, no caffeine and eating like a rabbit so I’m just going to ramble. I just came back from a beautiful vacation and it gave me new resolve. Prior to leaving I was unsure I wanted to do the radiation testing and treatment because of the risks involved but coming home after being away, spending time thinking and praying, I’m ready. It boiled down to me trusting the doctors’ expertise and ultimately trusting God and releasing control.img_9233

Our church is doing a series called ‘Riding the Storm’ and here I am, almost EXACTLY 10 years after being diagnosed and treated for thyroid cancer the first time, back in an even bigger storm because of metastasis. Life is full of storms and at times it can be a lonely place because no one is in the exact same circumstances and their lives along with everything around you is still going on as ‘normal’. It’s like moving in slow motion while everyone else is going about their business (feels like I’m in The Matrix) . Also no matter how hard you try to describe everything you’re feeling sometimes the heart bears no words. Every morning on vacation I trekked out to the beach pretty early and each day was different; there were sunny, blue sky, peaceful mornings but a couple days started img_1948darker with a storm that changed the waves, the temperature, and obviously the sky. The one constant I knew was that the sun was behind each cloud and eventually it would break through the clouds and light up the sky. Similar to the storms of life, the Son is the constant and despite the clouds, I know He’s there. Ten years ago I did a video for my church during my first cancer diagnosis (you can catch it here~ https://vimeo.com/52232853). So much has changed since that video including more life storms like divorce and obviously cancer’s return a few times (including now), career changes but also rainbow moments like finding and marrying an awesome man who is caring for and supporting me through this storm. The predominant message from my video has sustained me through it all…trust. I’m not going to lie, I’ve had a couple panic attacks leading up to this upcoming procedure but I’ve been able to breath through telling myself that God is with me and He is control. Trust. Today I will continue body surfingimg_1935 those big waves of this storm and trust God.

Today I wear Honest Beauty Truly Kissable Lip Color in Strawberry Kiss. I own this lipstick in a couple colors. They’re moisturizing, lightweight, and only use ‘clean’ products. They are kind of between a lipstick and a gloss and not super long lasting but nice. I chose this color because it’s red and I’m ready to fight. Oh and stay tuned…big things planned for my future journey!! Cheers!

Power of Story

16 Mar

I heard a cancer survivor speak recently and I have to admit I was a little annoyed. I am incredibly happy that this person was completely cancer free and that her treatment worked for her, it’s a place all cancer fighters hope for. I think it was her story and her ‘after’ story that irritated me. The presentation was to a large group so I can imagine it may have been stressful but what I missed was a little authenticity, the guts of her journey. Maybe the story was too simple; got cancer, got treated, got cured, stayed positive, doesn’t remember having any ups and downs emotionally. Maybe I’m being too cynical, that’s probably it. All I know is for me to share in her joy and excitement I needed to be able to connect to her story and being a Stage 4 cancer fighter currently, the expectations and probability to connect was high but it didn’t happen. I wasn’t inspired, and all I could do was sigh, ‘that’s nice, good for her,’ a sharp contrast to someone I heard speak last year. Listening to last year’s survivor story left me on the edge of my seat, I was in tears as I was brought into her journey with her words and I wanted to seek her out afterward and know more. I didn’t even have cancer then.

You may tell a tale that takes up residence in someone’s soul, becomes their blood and self and purpose. That tale will move them and drive them and who knows what they might do because of it, because of your words. That is your role, your gift.’~Erin Morgenstern

Have you ever thought about that? The possibility that your story could actually take residence in someone’s soul and become part of their blood and self and purpose. Whoa. If that’s the case, would you be more truthful about who you are, your feelings, your purpose, your words? What I wanted from the speaker was authenticity, truth, and maybe her truth was just that simple. Maybe she didn’t have low points in her journey or maybe she just didn’t let herself get there. My truth on my current cancer path is different and that’s ok because we are all created differently. The authentic self is soul made visible. – Sarah Ban Breathnach  Be authentic.

Today’s page in my story is a jumble of words and emotions. My mind is all over the place. I have the consistency of work and kid rhythms but my mind and heart are still longing to save the world, to check things off on my ever growing bucket list, to see dreams become reality. I heard a fellow cancer fighter say that she tries to create such a big and busy life in order to shove down the ugly cancer stuff; in essence to make cancer just a small part in her mind. I feel the same, planning big, checking things off my bucket list and keeping busy helps me forget on occasion that I have cancer and it also helps me in a small way not to live from scan to scan. Faith. I recently read from an Oswald Chambers devotional that at the beginning of the Christian walk we are so marked by feelings, more by sight than by faith, but there comes a time when that joy is not what it used to be and that sometimes the soul gets dark but that is when God is taking the soul out of the realm of religious feeling and emotion into the realm of faith (all paraphrased). Faithless is he that says farewell when the road darkens.” ~J.R.R. Tolkien. Deep faith. I’m right there now too. I have a sweet relationship with God that has deepened over the years through life, cancer, and other obstacles, and it’s what’s giving me hope. On Jen Hatmaker’s podcast she ends each episode with the question, ‘What is saving your life right now?’ I have to say for me, it’s my quiet time with God each day and the people I have chosen to surround myself with, my family and my friends; both give me hope, peace, and joy. My mind may be in overdrive but today I get to add another page to my story, I’m alive.

Today I wear Flower Petal Pout Lip Color in Chestnut Kiss. I was pleasantly surprised by these lipsticks from Drew Barrymore’s line. They are inexpensive, have great color, are pretty long lasting, and are fairly moisturizing as well. I chose this color because I was looking for an everyday brown that I could wear without looking ‘dirty’ on my brown skin and this was actually perfect! Cheers!

Stable, but…

30 Jan

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Stable again! My cancer is still stable! I have to say I am starting to love that word because well, I have to. What does it even mean? It has been such an interesting and emotional ride and just as quickly as the mood swings up it can easily make it’s way back down. Cancer just sucks. I read a blog written by another cancer warrior last week and it. was. perfect. It perfectly described how I’ve been feeling and I have used this analogy with a number of people already. The writer described her cancer as a bomb strapped to her chest not knowing when it was actually going to blow and that is pretty much how I feel. Categorized as stable is exactly that, still with cancer, but with stable and slow growth; practically speaking the tumors have grown less than 20% since the previous scan. I guess this is the goal if you are living with cancer so I try to be really happy about it. Going back to the bomb analogy and combining it with statistics for my particular ‘brand’ of cancer it goes something like this…in 5 years, 50% of the bombs will have exploded and in 10 years, 9 of 10 bombs will have exploded. Barring all scientific advances, that’s a little rough to think about and that is what keeps my heart heavy and my mind focused on time. The other side of the coin is this, science is advancing faster than the doctors can keep up with so it seems statistics change on an almost daily basis, hallelujah! For now, my mind wrestles with the bomb strapped to my chest not knowing when it will go off but every ‘stable’ buys me more time.

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photo cred: kensington church

I am part of a small, closed Facebook support group of people with the same cancer (both type and stage) as me. Since metastatic thyroid cancer is a little more rare it was nice to find a place with resources and people just like me. Today I heard that one of the moderators passed away rather quickly after he took a bad turn just after the new year. His posts were some of my favorite because he brought both quirky and lighthearted comments along with scientific articles. He posted after the new year and said he made it to where the doctors said he would but if he got to 2019 then he would beat that deadline. Yesterday he posted from his hospital bed that things were not good and today he’s gone. Boom. Sad. So just as quickly after rejoicing my stable scan I’m reminded that I still carry that bomb. It has definitely helped keeping my journal of positive moments and points of gratitude daily. It refocuses my mind and reminds me that we all just have today. Most if not all the moments and things I’m grateful for revolve around the people I’m surrounded by. Joy is still my word this year and I am pressing through; moment by moment seeking out things that bring a smile to my face and trying to surround myself with people that bring me joy, love , and lots of laughter. I am finally chasing old dreams and goals too which has been a fun and interesting journey! ‘The real man smiles in trouble, gathers strength from distress, and grows brave by reflection.’ ~Thomas Paine
Stable is great! I will continue to smile, grow strong, and grow brave!

Today I wear Stila Color Balm Lipstick in Elyssa. I do love these lipsticks because they feel like a lip balm and have a peppermint taste and smell while also having great color. I chose Elyssa which is a deep brown berry because it looks fairly dark on me but still has the lightness of berry (so it’s not like I’m wearing black lipstick). It kind of describes my mood at times..kinda dark (because of that stupid bomb), but the brightness is still there shining through. Cheers!

Still Waiting…

21 Jan

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I am still waiting. Yup, that’s right…I go from scanxiety to results-anxiety and it isn’t fun. I have to say that in my whole, almost 10 year history of PET scans and CT scans this is the longest I have waited for results. Typically I have gotten the results by the end of the next day, even if the next day was a Saturday but now it’s been 3 LONG days. The mind is a funny thing, it has the ability to take you down a bad path and your body actually feels it. In the past 3 days my thoughts have run the gamut from best case scenario to the worst and the longer I wait the more my mind and thoughts rollercoaster. It’s nuts. I have desperately been trying to occupy my mind on other things but it always comes back to the silence and the wondering. This weekend I have learned how to play the ukelele, have looked up different recipes in an attempt to meal plan for the week, I’ve read half of a book I just started, we went out with friends, I’ve been to the gym, and here I sit, tired from not sleeping well and staring at my phone with hopes that my doctor will call. I know, I know, I have no control over when those results will be done. Yeesh.

This past week I listened to Rob Bell (I know he’s controversial but he’s still interesting and makes you think) being interviewed on a podcast. He spoke about the time he had a concussion and could not process anything except the ‘now’. He said in that state of mind everything ‘now’ was beautiful, to the point that when his kids entered the room he would cry. That is mostly how I feel. Historically I’ve never really been a person who looks too far ahead; I never bought sale clothes at the end of the season for the following year, or clearance Christmas decor for the following year, etc. My reason would always be that I didn’t know where I’d be the following year, or what I’d be doing, or regarding clothes, what size I’d be the following year. Welp, cancer has magnified this trait of mine…everything is NOW. When I look at my kids or sometimes even think about them I cry. When there’s a beautiful sky, I tear up. Shoot, I can look at my dog and burst into tears at how beautiful and loving he is. I was speaking img_1191to a coworker a little about my grief and anxiety (which I really hadn’t felt to this extreme before) and he asked what made this time so different than the last few rounds with cancer. Outside the obvious ‘this time it’s stage 4’ I realized that I’m more anxious because right now my life is great; I have an amazing husband that brings me so much joy and laughter, my kids are great, I have great friends, I work with amazing people at a great company, everything is good and fun and peaceful and all I want is more time to rest in this good. I just want to rest here awhile…in the good. So I wait here in the good and (semi)patiently continue to trust in God’s plan.

‘I believe that a trusting attitude and a patient attitude go hand in hand. You see, when you let go and learn to trust God, it releases joy in your life. And when you trust God, you’re able to be more patient. Patience is not just about waiting for something… it’s about how you wait, or your attitude while waiting.’~Joyce Meyer

Today I wear Sephora Collection Lipstick in Yum Yum. I wanted to try one of these lipsticks by Sephora because of the packaging, it helps that they’re fairly inexpensive. This is a good color for everyday and I love the name..yum yum (plus it has chocolate chip cookies on the package). Cheers!

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