Tag Archives: lipstick journey

Courage

28 Aug

alex

This has been one of the toughest weeks in the hospital with my son. As you know from my last blog, my 16 year old suffered a stroke on August 2nd. Since then he went from the ICU to a step down unit, to in patient rehab. He has made TONS of progress in terms of speech and his right side gaining movement, but all of this progress was leading up to 2 procedures to ‘fix’ the AVM in his brain; one to stop the blood flow in that area, followed by brain surgery to fix the actual malformation. What went from deepest sorrow, to joy from getting better, returned to grief and fear this past week for these next two steps. Everyday since last Friday, grief, fear, and joy lived simultaneously in his hospital room. During the day we would experience the joy of something gaining motion but at night, the fear of the upcoming procedures and what changes may happen would steal the joy. Then there were the questions amidst tears in the quiet before bed each night; Why did this happen to me? Why can’t I just be a normal teen? Why me? I didn’t know this momma’s heart could break even more, but watching your child in pain and struggling with these unanswerable questions broke the remainder of what I had left.

How do you answer these questions when you don’t have the answers? How do you remain courageous when you yourself have fear? All I could do was hug him, cry with him and tell him that it was ok to cry, be afraid, and ask questions but in the morning he needed to fight back and to push forward. I told him to ask God to strengthen and sustain him and to give him peace. For a kid (and even for an adult), that sounds so generic and blasé’, but it’s what I have to hang on to so I’m going to hang on to it. I also told him when he’s older, he can tell his kids and grandkids about the scar on his head and how he overcame the biggest challenge of his life when he was just a kid. Ann Voskamp speaks of grief and loss as a type of empty or negative space in our hearts which gives our lives definition; its constant presence in our thoughts and actions. She then says that God uses this space to give us permission to pause, help us reevaluate and draw our attention to what is positive-God Himself and the hope we have.

I am exhausted, mentally and physically. On top of this, we had 3 kids recently go off to college and another is starting her senior year of high school. Life moves forward. I thought that a Stage 4 diagnosis would do me in, but watching and caring for your child through such a major health crisis goes beyond human capability. I understand the being strong and fighting part when it comes to me and my fight, but for my child? It’s the next level. Children believe you when they see in your eyes that you believe, and it has taken every inch of my being, with HEAVY reliance on my faith to be strong and courageous for both of us. Love gives courage. We talk about life in seasons, ‘this is just a good or bad season,’ etc, but I heard Shauna Niequist on a podcast and she referred to life as more of a railroad track, the good and bad happen simultaneously side by side. I agree because I’ve seen it every day we’ve been here and even through my own cancer journey. In this hell, there has been light. On the worst of days, there have been glimmers of hope. There may have been tears but there has been laughter as well; always good and bad side by side.

The love we have experienced from friends, family, nurses, even strangers have meant so much and has lifted us up. I cannot thank you all enough for all the cards, texts, gifts, and prayers. As a Christian, I have always known the story of God and Jesus but now I understand even more the incredible sacrifice; a Father watching his son suffer real human suffering to give us all hope. That is love. Love gives courage.

Do not fear for I am with you; do not anxiously look about you, for I am your God. I will strengthen you…I will uphold you.’~Isaiah 41:10

 

New Normal

23 Jun

scan day

My three month scan came and went and my lung nodules are still stable! Because of all the insurance craziness leading up to the scan, I wasn’t in a rush to get the results. My cancer has officially been stable for 2 years (next month) so now my scans move to every 6 months. It’s good and it’s bad. Every 3 months was hard but it felt comforting to keep tabs on those tumors, moving to every 6 months? Eh, I’ll try not to panic in between wondering if they’re growing.

I visit cancer centers for my job on a daily basis, ironic huh? Most of the people I speak to don’t even know I have cancer but I’m good with that. This past week I was speaking to a social worker about her role in a patient’s cancer journey and I ended up sharing with her that I myself have Stage 4 cancer. I could see her eyes and demeanor change as she shifted into ‘social worker’ gear. I told her that after this last scan I have felt more at ease knowing that my tumors have had little to no growth over the last two years; ‘still stable’ gave me a boost of hope. I told her that I was now trying to view my cancer as more of a chronic disease. This is my new normal, navigating a ‘normal-ish’ life knowing I have cancer. Yes, it’s weird.

On a podcast this week a cancer survivor said that while going through treatment, people would call her ‘warrior’ and ‘strong’ but she was just doing what she needed to do to survive. She said that integrating back into real life AFTER the tests and treatments was actually more difficult because there was no handbook, no one scheduling a test or bloodwork; she faced mortality and life became more ‘simple’. Simple meaning being grateful, loving others, being kind, appreciating time minus all the b.s. and drama and complaining and stressors that don’t really matter in the end. This is my mind daily, integrating into everyone’s normal daily life but having a more simple mindset because with metastatic cancer nothing is ‘normal’ living anymore. I can’t forget I have several cancerous nodules in my lungs and I can’t pretend that I don’t think they’re ever going to grow. How do I navigate normal and not really normal on a daily? Advice appreciated but I’ll start with grateful. Most of the time I view life as simple like the podcast chick, on occasion I get swept up in the drama but then I remember that life is fleeting.

How long is a long life? In a few months I’ll be turning 50, FIFTY!! I’ve technically lived a long life already. How do I want to live the rest? Warrior strong and not tinged with sadness and cynicism that having cancer can sometimes bring. Simple. Intentional. Grateful.

Today I wear Bare Minerals Gen Nude lipstick in XOX (which is a dusty rose) with The Lipstick Journey lipstick in Promise on top. The lipstick I created has enough pigment to wear alone but the texture is also perfect to layer on top of something you may already have to ‘adjust’ the tones. Putting Promise on top of this lipstick just lifts it up a notch and adds a tiny but of shimmer. Cheers!

 

Ever Onward

26 May

car

In Kelly Corrigan’s book, Tell Me More, she talks about mottos. Her life motto after she finished college was, ‘Things happen when you leave the house.’ Meaning, any day could be a huge day. You don’t know who you will speak to, bump into, what new opportunity exists outside your door, but you have to leave the house.

The past few weeks have been pretty amazing. I was nominated and chosen as a top female founder/entrepreneur in the Detroit area, have had all the kids under one roof again for a short time, then this past weekend had an amazing photo shoot for my founderlipstick company with beautiful thrivers; ladies thriving through life despite health surprises. Survivors of breast cancer and lymphoma, one still fighting brain cancer, and one living with alopecia. It was a magical morning for me and one that brought me tears. It struck me that each one of us was fighting or had fought something that was trying to take us down. We had that common thread of fear, sadness, insecurity, but here we were, surviving, overcoming, fighting, and smiling. I had each of the ladies write their stories down in my notebook and the last words of one of the women were, ‘Ever Onward.’ Perfect. Every one of us pressing forward on our journeys. This is what my lipstick company is about and it made my heart full. Life IS our canvas and these are the things that can happen when you choose to get out of your comfort zone…when you decide to leave the house.

Life is made up of huge events that mark themselves as memories but it is also made up of millions of tiny moments in between. Is it possible to just be in the minutia as much as in the big? The kids were all here together for the first time in awhile, all 5 in one house. Yes it was chaos at times but with the older 2 in college most of the year I didn’t mind. I don’t miss the chaos but I do miss them. Time is my love language, with that comes the fact that I never want to miss the moments, and with the older two home I wanted as much time as I could squeeze out. That’s the goal, be in the moments, the big, the small, ALL OF THEM. I can’t help thinking about the beautiful photo shoot without thinking about all the moments that got me there; cancer, lipstick, mission, life. Then there’s the top founder nomination; cancer, book, blog, cancer again, vision, mission, starting a company, hustle. Lots and lots of minutia but each moment counting for something.

I have my next CT scan in a week. I can’t believe it’s already been three months since the last one but I’ve been in that weird head space again. I’m sad that I still have cancer and have to do this every three months. I’m nervous about what they may find. Am I still stable? Are the tumors growing? Are there more tumors? Is the cancer spreading? I hate all those feelings and questions, I hate the time bomb strapped to my chest waiting to explode on me, and I hate the fact that these questions steal precious moments. If I am still stable I will be one month shy of having stable Stage 4 metastatic cancer for 2 years which in my mind classifies my cancer as a chronic illness like diabetes or asthma (at least that’s how I’m going to try to think about it). It’s crazy but EVER ONWARD.

You must live in the present, launch yourself on every wave, find your eternity in each moment. Fools stand on their island opportunities and look toward another land. There is no other land, there is no other life but this.’~Henry David Thoreau

Today I wear The Lipstick Journey lipstick in 2 colors, yes you can layer! I put Playful on the bottom and Promise on top which makes a beautiful brighter mauve color on me. It’s actually the perfect combo for how I’m feeling, still playful because of all the amazing moments and hanging on to the promise that God is good and He will continue carrying me through whatever the results of the scan. Cheers!

 

Stable

13 Mar

facetune_13-03-2019-22-37-54

I am stable. I love the word stable. The definition of stable in the dictionary says ‘firmly fixed, not deteriorating, sane, sensible.’ I’ll take it. As a metastatic cancer fighter stable is the best possible word whether you’re on treatment or not, stable is the goal. Stable means I am not deteriorating. So here I am with the best news and not on any type of treatment yet. Awesome. I got the news via text from my doctor. [Note, YOU ARE YOUR OWN ADVOCATE. Find a doctor that fights WITH you and cares enough to tell you news you want, no, NEED to hear right away.] Anyhow, I get to soak in more life for awhile and I’m good with that.

Last week was a whirlwind of a week. Had my scan on Monday, got my news on Tuesday, then flew out for work Wednesday. I honestly did not have time to process news I had been waiting for for 6 months. After working Wednesday with my co-worker, I found myself sitting at a bar in a nice restaurant eating by myself. I ordered an appetizer, had a delicious dinner, and ordered the best wine. I pretty much ordered whatever the waitress recommended. At the end of the meal she asked about dessert and I said ‘no way.’ She looked at me and said, ‘Get the dessert, don’t you have anything to celebrate?’ That was it. I burst into tears. I realized that through the busy-ness of life and having to travel for work, I had not processed the news of being stable. IT IS SUCH A BIG DEAL!! She ended up crying with me then not charging me for this extravagant meal (there are fantastic human beings out there), which made me cry even harder. I left the restaurant and drove to my hotel still a blubbering mess.

After my work trip I was asked to share my story at an International Women’s Day celebration back in Detroit(it was a full week). I have to say I was SUPER nervous. I’m not sure what I even said but I do know I was able to touch on the major parts of my story…like my four trips with cancer and starting the lipstick company out of my need to have purpose and meaning from having cancer. What I realized afterward is that the ‘story’ really happens in all of the in-between times; in between those big events of diagnosis, surgery, and treatment. The stories are the waitress and the free meal, the moms on my sons basketball team making a shirt to support my cancer journey and surprising me with it by having all the boys wear it at a game, the tears I cry thinking about the kids and their future that I may not be part of…there are so many moments in a day that make up our stories and 15 minutes couldn’t touch the surface of those. ‘Life isn’t a matter of milestones, but of moments.’~Rose Kennedy  Never forget to notice the moments and soak them in.

I saw my doctor on Monday, one week after my scan. It was a generally good visit. He was smiling when he said, ‘All looks good! Still stable, no new tumors. Any questions?’ We chatted for awhile, he looked at my bloodwork, then looked at me and said, ‘I’d like another scan in 3 months instead of 6 this time.’ Hmmmm. There it is. That question in the back of my mind that’s been sitting there since the beginning, ‘When’s the scan, what will they find?’ I’m back in my scan cycle of life but instead of every 6 months, I’m back at 3 months. I read a blog written by another cancer warrior and it perfectly describes how I feel. The writer described her cancer as a bomb strapped to her chest not knowing when it was actually going to blow and that is pretty much how I feel. Categorized as stable is exactly that, still with cancer, but with stable and slow growth. Going back to the bomb analogy and combining it with statistics for my particular ‘brand’ of cancer it goes something like this…in 5 years, 50% of the bombs will have exploded and in 10 years, 9 of 10 bombs will have exploded. Barring all scientific advances, that’s a little rough to think about and that is what keeps my heart heavy and my mind focused on time. The other side of the coin is this, science is advancing faster than the doctors can keep up with so it seems statistics change on a daily basis, hallelujah! More time.

Today I wear a combo of two Lipstick Journey lipsticks, Stormy on the bottom and Fierce on top. It is my favorite combination, it deepens the red and ‘lightens’ the storm. Perfect. Cheers to a new day!

 

Winter

23 Feb

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In the winter I am writing about, there was much darkness. Darkness of nature, darkness of event, darkness of spirit. The sprawling darkness of not knowing. We speak of the light of reason. I would speak here of the darkness of the world, and the light of ______. But I don’t know what to call it. Maybe hope. Maybe faith, but not a shaped faith-only, say, a gesture, or a continuum of gestures. But probably it is closer to hope, that is more active, and far messier than faith must be. Faith, as I imagine it, is tensile, and cool, and has no need of words. Hope, I know, is a fighter and a screamer.’ ~Mary Oliver

It’s pretty much the middle of winter in Michigan so yes, it’s pretty much dark and gray most of the time. I never thought I was the one affected by continual gray days but I find when the sun decides to show up my mood is incredibly lighter. That last line of the poem really spoke to me, hope is a fighter and a screamer.

This week I had an official launch party for my lipstick company. As I was preparing for the party, nerves and stress were getting the best of me. I had lots of help and direction so the stress mainly came from me having to speak, and also having people there I did not know very well specifically coming to see me and meet my new baby, the lipstick…tough being an introvert. The party went unbelievably well and I now find myself being that fighting and screaming hope-filled person. It’s a really crazy place to be mentally because on the one hand, I’m filled with gratitude, excitement and ‘future’ while on the other, I’m still filled with gratitude but have questions about ‘future’. One day celebrating the birth of a dream while a little over a week from now, a scan to see if those dumb tumors are growing… fighting and screaming hope.

I am also a woman of great faith and I get what Mary Oliver was saying, ‘faith is tensile and cool.’ Faith stretches when I’m feeling at my bottom and it is the undergirding of my being. Without my faith in God and a bigger master plan, my hope would be dwindling in my circumstances. Winter in Michigan is long and gray and dark but we need the dark as much as we need the light. In the dark we rest and renew our bodies for the next day. In the dark we get to see the infinite possibilities of the stars in the sky. It has been in my darkest moments that my trust in God and faith have grown. As Barbara Brown Taylor says, ‘new life starts in the dark.

Today I’m fighting and screaming hope because I know there are still adventures to be had and maybe more dreams opening up. Spring still comes after winter. ‘For awhile you have a lifetime. Fiercely wanting what we all do, JUST A LITTLE MORE OF LIFE.’~ Mary Oliver

Today I wear The Lipstick Journey lipstick in Fierce (which is on sale this month to celebrate Galentines). A beautiful red that looks great on everyone. Don’t be afraid to wear red! Cheers!

A New Year

4 Jan

cheers

Every moment is a new beginning
Every handshake a promise
Every quest implicates the other just as every word can become prayer
If life is not a celebration why remember it
If life, mine or that of my fellow man is not an offering to the other, what are we doing on this earth~Elie Wiesel

The first week of 2019 is basically over. I had so many plans to continue some disciplines and add new ones beginning January 1; eating more vegetables, juicing for breakfast, doing at least 20 minutes of some type of exercise daily, meditating/praying first thing in the morning, setting a mantra for the day to set the tone, writing weekly/monthly goals, then ending the day writing in my gratitude journal. Well, four days into the new year and I have only done one, maybe two things off that list daily so far. Ugh but oh well. All good stuff and all in my subconscious so I will try every single day 🙂

The holidays were a whirlwind for me. All the kids were home, it was noisy, chaotic, messy, and we kept running out of food but it was great. There’s something as a mom about having everyone under one roof. I think despite the chaos, I slept better. There are moments I feel so strong and can compartmentalize my diagnosis. Since I’ve been stable over a year now, I’m mostly hopeful that I’ll be stable for a long time. On occasion however, thoughts of having cancer pulls me down. Thankfully, those occasions are moving farther and farther apart. Typically I’m reminded of my cancer from difficulty breathing or my left arm going numb but this time it was different. I was reminded of my cancer out of gratefulness. After being surrounded by family and friends over the holidays, I realized the very things I was so grateful for were the exact things I will miss, my family and friends. It’s crazy but the more thankful I felt for everyone being around, the more sad (and angry) I felt for having cancer. Ugh again. It comes back to the importance of relationships, it’s what we’re made for.

Well, it’s a new year and I have a new word for the year. Renewal. I was reading a prayer devotional a few weeks back and that word popped out and I felt a stirring in my heart. The best definition I found (applicable to me) was ‘the repair of something worn out, run down, or broken’. It’s a rebuilding. I’m not sure why God has put this word in my heart but every time I hear it (which has been fairly constant since then) I feel something. Faith, hope, my body, my soul…renewal. What’s your word?

The quote at the top speaks to both my word from last year (joy), and transitions to my word this year. If life is not a celebration why remember it? JOY. Every moment is a new beginning. RENEWAL. Happy New Year everyone!

Today I wear The Lipstick Journey lipstick in Serene because that color means Peace to me. It’s a brown/peach that can be worn every day. Cheers to 2019!

 

Possibility

27 Nov

restaurant

There comes a time when the world gets quiet and the only thing left is your own heart. So you’d better learn the sound of it. Otherwise you’ll never understand what it’s saying’.~Lauren Roberts

When I read that quote it really spoke to me and helped explain a little of what has happened to me since getting diagnosed with metastatic cancer in July of 2017. The world got quiet and I heard (and continue hearing) my heart. It’s really been an incredible year feeling every emotion from the depths of sorrow from the diagnosis, to having moments of pure joy just from being alive. In the quiet is where I’ve prayed and poured my heart out to God. In the quiet is where I’ve wept and in the quiet is where I’ve learned more of who I am and what my dreams and goals are.

This past Thanksgiving was one of those times of pure joy. My two older kids were home from college and all I felt was joy having everyone around. Even though I did most of the cooking and there were only a few moments of silence the whole weekend, I pretty much had a smile on my face the entire time. It was awesome having a crazy, active, and alive house for awhile. I do have to say, there are still 3 teens at home so our house can still get crazy and loud but school, sports, and work break that up a bit.

After my diagnosis the world seemed to go in slow motion, and did get quiet around me. I have spent a lot of time thinking, praying and being intentional. When you’re faced with your own mortality you start to really analyze how you use your time and truly, how you want to use it. This is what I believe the quote meant…the only thing left to listen to was my heart and God, because He owns my heart. Something I knew I wanted to do was help other patients fighting cancer.

The last 3 times I had cancer, surgery was involved and therefore, hospital stays. The hardest times for me was when I was alone in that hospital room and I was alone A LOT. Yes I had visitors and lots of support from family and friends but when you are just laying there 24/7, there’s lots of alone time. When I was going through radiation for 7 weeks I was alone most of the time then too. As I walked past some of the rooms when leaving the hospital I saw many people alone and couldn’t imagine not having support of friends and family. After all of that, the one thing I knew was that I didn’t want other people to have to fight alone or to feel alone.

Over the past year or so I’ve been working on bringing two of my passions/dreams together, lipstick and helping other cancer fighters. Last Saturday I launched my very own lipstick company, The Lipstick Journey, combining story with color. It is a dream come true. I decided what ingredients I wanted and those I didn’t. I decided the formula and how I wanted it to feel. I named the colors and wrote the descriptions. What a fun journey it has been. During my times with cancer (and now) I would use lipstick and the power of color to express how I felt and now, through my company, I want to help others do the same. I plan on giving partial proceeds, as well as time in volunteer efforts once a month to two organizations I have relationships with, with hopes of adding more organizations in the future. This past year I was sent a Fighting Pretty box and loved it, and since cancer #2 in 2009, I have been an angel mentor with Imerman Angels. Both amazing organizations that uplift and help cancer fighters not feel so alone.

TLJIs it ever too late to dream? Never. Stage 4, metastatic cancer? It’s now or never. Keep dreaming. God puts dreams into your soul and sometimes it’s adversity that reveals them. It has been a beautiful and fun journey and has been one thing giving me life. What is it that brings you life and joy? Maybe you should be walking in that direction, just take that first step.

Consult not your fears but your hopes and your dreams. Think not about your frustrations, but about your unfulfilled potential. Concern yourself not with what you tried and failed in, but with what it is still possible for you to do’.~Pope John XXIII

Today I wear Fierce from The Lipstick Journey…self explanatory! Cheers!

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