Stable, Year 7

31 Aug

A couple of weeks ago I had my scans to check on the multiple cancer nodules housed in my lungs. It has been almost exactly 7 years since I was diagnosed with Stage 4 metastatic cancer and I’ve had scans every 3-6 months for SEVEN YEARS. STABLE. I usually greet the news with overwhelming relief and crazy joy but this time was different; still relief but with maybe more contemplation? I’m still processing the news and why the ‘celebration’ felt different. I’m thinking about what it has meant to be stable all these years and how it’s changed me and my perspective, how I’m living, and maybe how I want to live going forward. I cry thinking about how the word cancer first changed MY LIFE 16 years ago and how the words ‘Stage 4’ changed ME 7 years ago after wrestling with cancer two other times in between. 

We talk about gratitude a lot and I want to say I’m more grateful, but am I? I don’t want to have to think about cancer anymore. I don’t want to wonder if my next scan will still be stable or if I feel ‘off’ one day that my cancer is spreading, or if it’s humid and the air is heavy and I have a harder time breathing if it’s more or growing nodules in my lungs. I don’t want to wonder if I will make it to a child’s wedding or meet my first grandchild. I also don’t want to grieve what might be and miss what is. I know none of this is in my control and that there may be other factors that take me out, but cancer is what’s in front of me or should I say inside of me. I’m tired of the cancer dance. I’m tired. But yes, I’m still beyond grateful because without the weight of it, I would maybe miss the magic around me or waste even more time and air stressing about stupid stuff. I’m still tired.

The concept of impermanence is hard but living in duality may be even harder; making decisions can feel heavy, caught between I don’t care and I care too much. Talking and saving for retirement and but can’t focus on anything but today, planning for the future but wondering about the scan results six months from now, etc…it stinks. ‘I don’t care’ is my brain saying ‘I can’t process that right now’ or ‘does not compute’.

I’ve changed. Quality time has always been my top love language, but now it’s exaggerated. If I have a chance and the funds to see my kids, I will go. I want to surround myself with people whose joy is contagious. I crave community because the richest person in my book is one that’s filled with love, laughter, and time with family and friends. I will continue sharing my story and being vulnerable in hopes that it allows whoever else to be vulnerable with theirs. We learn from each others’ stories and vulnerability makes us more human. The perfection we see on Facebook and IG is mostly fake, fills us with fake longing, sometimes shame, envy and sadness that we don’t have what the picture shows us when truly the picture is just a picture. It’s flat and missing the three-dimensional parts of peoples lives. I’m softer, my heart feels like mush and I cry sometimes over the simplest of things. I’m also harder, I’ve learned to say no a little more without the guilt behind it. I don’t want to struggle or people please anymore to get attention or be included because time is too valuable and how exhausting is that?

The world feels like it’s on fire; people are more short tempered, judgmental, angry, self centered, and just ‘harder’ or hard hearted in general, unwilling or afraid to cross the lines or even share the lines of what they think how things ‘should be.’ Well, we all suck and I’m no better, but I don’t want to be one of those grouchy people, it’s such a waste of precious air.

I’m learning to embrace the impermanence of life even though it was by force (or I should say by diagnosis). No one gets to live forever. In a book I recently finished it said “That time always ends a second before you’re ready. That life is the minutes you want minus one. -The Invisible Life of Addie Larue, by VE Schwab. There’s no best time, no one’s ever ready. 

Hope. Hope to me shows up when an adult child texts me that they love or miss me (without my prompting), when someone shows kindness, when my dog looks at me and tilts his head like he’s paying attention and understands everything I say, etc. Hope is tangible, it’s simple and it’s always in your face when your heart is broken enough to let the light in. My heart is broken. It’s not a bad thing, it just means it’s tender and has lots of space for love, joy, hope, and empathy. Yes, grateful for that too.

Life is short. God loves me, Jesus carries me, that’s my solid. I’m reminded of His love and goodness constantly. My cancer is stable. 6 months from now it may not be, or maybe it will be for the next 20 years, who knows? Today I will breathe in life and take this word stable and add it to my bank of hope for however long it carries me.

Life is brutally hard & still holds holy beautiful holy moments & we are all standing on the edge of more joy, more wonder, more awe in God, who carries us through all the waves of heartache and heartawe, and into the expansive love of His heart.’~ Ann Voskamp

4 Responses to “Stable, Year 7”

  1. JUDY BAUMHAUER's avatar
    JUDY BAUMHAUER August 31, 2024 at 9:43 am #

    GOD BLESS YOU ANNA. ALWAYS LOVE READING YOUR COMMENTS. I AM SAD EVERY DAY SINCE DICK PASSED AWAY BUT ALSO SO ANGRY AT HIM FOR THE WAY HE TREATED ME. WHATEVER – HE IS GONE AND I AM HERE. I AM BLESSED WITH MY FRIENDS AND FAMILY AND MOST OF ALL – THE 2 LITTLE GUYS THAT WE GOT – WHERE HE GOT COVID. THEY ARE LIKE MY CHILDREN AND LOVE ME BEYOND WORDS. I WOULD BE SO LOST WITHOUT THEM. GOD BLESSED ME WITH THEM. THEY ARE MY CHILDREN AND SHOW THEIR UNENDING LOVE FOR ME EVERY MOMENT OF EVERY DAY. I MUST REMEMBER THE BLESSINGS THAT ARE FROM GOD AND NOT THE HURT AND SADNESS FROM DICK THAT I CAN NEVER FORGIVE HIM FOR. LIFE IS HARD BUT I AM SO BLESSED IN SO MANY, MANY, MANY WAYS. THANK YOU LORD FOR LOVING ME ALWAYS.

  2. Robin DeSantis's avatar
    Robin DeSantis August 31, 2024 at 8:05 pm #

    I am so blessed by our friendship. By your vulnerability, your strength and your compassion. Your writing always leaves me thinking deeper and loving you a little more.

  3. Shelly's avatar
    Shelly August 31, 2024 at 10:00 pm #

    I feel like you “dipped” into my heart and pulled out everything that I was feeling. I feel like you “peered” into my crazy brain and knew exactly what I was thinking. Everything Anna. Everything. The “beast” arrived (uninvited) 9 years ago for me. The “brutal heathen” showed up 4 years ago. 5 months into sorting out life with stage 4 I got sucker punched with leukemia (just for shits and giggles😡).

    All I ask for is to make it through ONE day without the “big C” creeping into my thoughts, tugging on my heart, sending me into an unscheduled panic attack, or having to lie to someone when they genuinely ask, “how are you doing.” Yep, it’s much easier to just say, “great!” Call it wishful thinking. Call it hope. Call it self preservation. How quickly I could drop to my knees and just cry, but my greatest fear is that I would be unable to stop. My best strategy…..don’t cry.

    Current situation…… STABLE as well. I hear you sister. Every bit of it and the blessings that come with it. I hear you sister. When will the rug under me be yanked? Since achieving remission on the leukemia front, my regimen has been treatments every three weeks for the metastatic business. 2.5 years of every three weeks. The lab knows to print an extra copy of bloodwork results for me. I cling to that. Will my numbers “get out of line” and go haywire in 3 weeks? I have to know that everything is in God’s time. The night when I was brought to my knees and my body was failing, God had me right where he wanted me. He needed my full and undivided attention. He got it. I had no control and He wanted me to completely trust Him❤️

    When I realize that no one understands how I feel, I know He does. When I feel like I can’t do “this” anymore, I know He will carry me. When I’m discouraged and crushed by how harsh the world is, He reminds me that paradise is waiting for me.
    Philippians 4:13 says it all for me and keeps me going. I often substitute “do” with “endure” because it’s rough. I don’t always feel like I’m “doing” very well but I feel like I can endure it all because I AM a child of a King❤️

    Hugs to you Anna and thank you for sharing your heart. You always create a “safe space” for me to do the same.

  4. Flora Migyanka's avatar
    Flora Migyanka September 3, 2024 at 9:08 am #

    Anna,

    You are so beautiful and I am in awe of your words. Thank you for all reminders of slowing down… while racing to do it all because we are never guaranteed anything. Thank you for sharing. I am sending you HUGS and hope to see you soon as well.

    xo Flora

Leave a reply to Shelly Cancel reply