Tag Archives: prayer

Insecure

13 Apr

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The more she looks back at her life, the more she is slowly beginning to find: not everything went according to plan, but she certainly learned from it all. She grew in ways she never imagined she would grow and no one can take that away from her.’ ~Morgan Harper Nichols

Last night I got to sing at one of my most favorite events of the year. Every year, one of my doctors holds a concert to celebrate World Voice Day; patients, staff, and even my doctor sings during the concert and it’s basically great fun and great music. The patients that sing all have had something affect their voice from polyps to paralysis, so listening to them sing and being part of the event as a singer is inspirational. Last year, I pretty much cried my whole song (first year with metastatic diagnosis), this year I felt stronger, more resilient, and a little less nervous. I almost cried at the end of my song because the lyrics really hit my heart, ‘Sometimes I wonder, where I’ve been…I may not win, but I can’t be thrown out here on my own.’ The lyrics took my breath away for a minute but I didn’t break. Catch the performance here(https://youtu.be/fuv-Z_1WfQ0)

I have to confess something. Ever since my metastatic diagnosis over a year ago I have felt kind of funky. I felt as if I have aged at a rapid pace, I’ve struggled with sadness, maybe depression at times, and lots of insecurity. I can’t exactly pinpoint what the feeling is, all I know is that it infiltrated my space. I went from being a fairly confident person to someone whose body betrayed her once again, but this time in a big way. It was a big enough shock to the system that for the first time I thought the cancer would finally win, and I was losing my voice, not literally, but having no say anymore. Consequently, things that came easier for me took more out of me. I was insecure about how I did my job, I was a wreck speaking in public, and everyday when I looked in the mirror all I could see was a girl who was exhausted from fighting her body. I didn’t even like having my picture taken because again, I saw a girl that was tired. Having cancer and what it does to your psyche really sucks.

About a month or 2 ago I felt something change. I started gaining my confidence, or maybe it’s just peace and joy, but I can feel it. I think it mostly stemmed from the fact that my last scan was still stable making it ‘stable disease’ for almost 2 years. Or maybe I was just tired of being tired. Whatever it was that changed my mojo, I have felt it and last night was an example. Yes I was nervous but deep down I felt confident that I could do it and make it through without crushing nerves and a shaky voice. Then again, even with a shaky voice, I was so ready. I guess I’ve hit the valley after learning about the diagnosis and am swinging back up to fight and live, it took awhile. I trust God, I know He’s got me. I know I will have seasons of doubt and fear again. I mean, my next scan is only about 7 weeks away so there’s that cycle again but I’m good. ‘Faith and Fear make poor bedfellows. Where one is found, the other cannot exist.’~Napoleon Hill  

The opening quote was written specifically for me by the talented poet Morgan Harper Nichols. She has made it her business to write words for people after knowing some of their story. With all the opportunities I’ve had to share my story lately, I have been able to look back at my life and see how much has transpired. It definitely has not gone as planned but I have grown and learned…and I AM STILL HERE. So much strength can be drawn from our stories. Thank you for following along with mine.

Today I wear The Lipstick Journey lipstick in Playful. I have been wearing this color a lot lately. It’s a bright plum, probably the brightest color I created. It’s exactly how I’ve been feeling lately, bright, joyful, and playful! Cheers!

Strength and Story

23 Mar

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Yesterday I had the chance to tell my story for a podcast that will be broadcast in a few weeks. I have to admit I was nervous for a few reasons; I didn’t know what to expect, I didn’t receive any questions ahead of time to prepare answers for, and I’m a little insecure about my voice because it is weak and ‘breath-y’ and a podcast is all voice. When Lauryn first called to get ready to record I asked what part of my story she wanted to hear, the cancer part, the lipstick part, how the cancer opened up the lipstick business, etc. She said, ‘Your whole story, beginning to end, everything you want to tell me, just keep talking.’ Woah. That’s a lot. I started with, ‘ I was born…’ I’m sure that freaked her out a little but I quickly jumped to my passions growing up then to the first time I had cancer. I described everything from finding out, to the procedures, work, kids, people, emotions, home life, etc. I described those things for every single time I was diagnosed until now. I spoke about being a mother to young kids the first time I was diagnosed and what that meant, then now being a mom to older teens/young adults and what being diagnosed with Stage 4 means to me and to them. And of course, I spoke about lipstick and the part it has played in my messy journey.

I talked for over an hour without interruption describing every nuance. I realized that this was the first time, if ever, I have shared all of those details out loud. Not just all of the times I was diagnosed, the when, and what happened, but all the emotions and most of my thoughts surrounding those times. Yes my voice shook, yes we both cried at times, but there was also laughter. I was literally exhausted for the rest of the day. The thing is, I let myself be super vulnerable and was able to open up, and after hearing myself speak about all that I had gone through up to this point, I felt strong. I have always thought that throughout my journey I did what I had to do to just keep going for me and my family and that was not strength, it was just will, and just because. After the interview I felt REALLY strong and realized that ‘the story’ was not really the big moments, it was every piece, fragment, emotion, in between. It was the filler in the pages between chapters and that is where the strength was really necessary. ‘You gain strength, courage, and confidence by every experience in which you really look fear in the face. You are able to say to yourself, ‘I lived through this horror, I can take the next thing that comes along.’~Eleanor Roosevelt.

At the end of my hour of babbling on the podcast, Lauryn had one question, ‘After everything, has your belief or faith in God changed?’ Good question. I have to say after the first 3 times with cancer I never asked God why. I just figured God had a plan and was generally at peace with whatever outcome. Total trust. This last diagnosis of metastatic cancer I finally asked God the why question. Not, ‘why me’, but more ‘why can’t my life just be good for awhile. Why can’t I just rest?’ I don’t know the answers but I still have peace with whatever. I absolutely still believe in God and if anything my faith has gotten even stronger. I told her that in the darkest of moments for me and with all the unknown, God was/is my only solid and that’s enough. ‘Never be afraid to trust an unknown future to a known God.’ -Corrie ten Boom 

I started my day yesterday seeing this quote on Lauryn’s Instagram and it was perfect,’Tell the story of the mountain you climbed. Your words could become a page in someone else’s survival guide.’~Morgan Harper Nichols. Amen and amen.

Today I’m wearing The Lipstick Journey lipstick in Playful which is a bright plum/berry. It’s the brightest color I created and it’s actually not super bright (meaning still wearable every day, not neon). I chose Playful because it’s spring and I’m feeling funky. Cheers!

 

Scan Day

3 Mar

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Here it is again. Tomorrow is scan day for me. Living with ‘stable’ metastatic cancer is so weird. First let me explain stable; stable disease means that although my cancer has spread to other parts of my body (namely my lungs), the tumors are either not growing or not shrinking, there are no new tumors, and the cancer has not spread to any new regions of the body. Bottom line, with a diagnosis of Stage 4 metastatic cancer with tumors in my lungs? Stable is an awesome thing. I have been stable for over a year so at the one year mark my doctor decided to stretch my scans from every 3 months to every 6 months. Well, it’s been 6 months. In a blog I wrote over a year ago I quoted author Bruce Feiler who referred to his scans as his ‘regular date with digital destiny’ to show whether his lung nodules had grown. He goes on to say, ‘Scans are like revolving doors, emotional roulette wheels that spin us around a few days and spit us out the other side.’ Yes, yes, and all yes, I’m going on a date tomorrow with my digital destiny.

I have to say I think the spread to every 6 months has been beneficial to my well-being. It has given me enough time to recover from the scan, infuse a little hope, resume normal life, and on occasion, forget the cancer exists. The problem is, internally this weekend or even this whole past week leading up to the scan I’ve been a wreck. Of course nothing visible to the public but anxiety I can feel in my stomach, heart, and mind. This past week I haven’t slept that well and have had a harder time breathing. This weekend I’ve been pretty emotional. Giving my son a morning hug and a nice note from one of the sponsors of my launch party this morning has brought tears to my eyes. I want to both crawl into bed and not get up but also jump out of my skin and run like the wind (even though I can’t really run anymore because of my breathing).

I will make it through. Just another day and another step in this crazy beautiful life. Ultimately, having scans on a consistent basis has also served as a reminder that life is short and that it’s precious. It’s a reminder to stop and be truly grateful for everything and everyone you’ve been blessed with. I think that’s why I get so emotional, not because of fear, but because my date with the scan forces me to stop and really think about my life and all the people. Dang, I love living so much surrounded by people I love. Monday is just another day and by Tuesday or Wednesday, whenever I get the results and whatever  they may be, I will be a little stronger than today.

I love those who can smile in trouble, who can gather strength from distress, and grow brave by reflection.’~ Leonardo da Vinci

Today I wear The Lipstick Journey lipstick in Promise which is beautiful, soft, shimmery pink. On the website I described wearing this color to remind yourself that tomorrow is a new day, a color full of hope and promise and a ‘pinky promise’ to yourself to be gentle to you. For today (and tomorrow) I pray for peace. Cheers!

 

Winter

23 Feb

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In the winter I am writing about, there was much darkness. Darkness of nature, darkness of event, darkness of spirit. The sprawling darkness of not knowing. We speak of the light of reason. I would speak here of the darkness of the world, and the light of ______. But I don’t know what to call it. Maybe hope. Maybe faith, but not a shaped faith-only, say, a gesture, or a continuum of gestures. But probably it is closer to hope, that is more active, and far messier than faith must be. Faith, as I imagine it, is tensile, and cool, and has no need of words. Hope, I know, is a fighter and a screamer.’ ~Mary Oliver

It’s pretty much the middle of winter in Michigan so yes, it’s pretty much dark and gray most of the time. I never thought I was the one affected by continual gray days but I find when the sun decides to show up my mood is incredibly lighter. That last line of the poem really spoke to me, hope is a fighter and a screamer.

This week I had an official launch party for my lipstick company. As I was preparing for the party, nerves and stress were getting the best of me. I had lots of help and direction so the stress mainly came from me having to speak, and also having people there I did not know very well specifically coming to see me and meet my new baby, the lipstick…tough being an introvert. The party went unbelievably well and I now find myself being that fighting and screaming hope-filled person. It’s a really crazy place to be mentally because on the one hand, I’m filled with gratitude, excitement and ‘future’ while on the other, I’m still filled with gratitude but have questions about ‘future’. One day celebrating the birth of a dream while a little over a week from now, a scan to see if those dumb tumors are growing… fighting and screaming hope.

I am also a woman of great faith and I get what Mary Oliver was saying, ‘faith is tensile and cool.’ Faith stretches when I’m feeling at my bottom and it is the undergirding of my being. Without my faith in God and a bigger master plan, my hope would be dwindling in my circumstances. Winter in Michigan is long and gray and dark but we need the dark as much as we need the light. In the dark we rest and renew our bodies for the next day. In the dark we get to see the infinite possibilities of the stars in the sky. It has been in my darkest moments that my trust in God and faith have grown. As Barbara Brown Taylor says, ‘new life starts in the dark.

Today I’m fighting and screaming hope because I know there are still adventures to be had and maybe more dreams opening up. Spring still comes after winter. ‘For awhile you have a lifetime. Fiercely wanting what we all do, JUST A LITTLE MORE OF LIFE.’~ Mary Oliver

Today I wear The Lipstick Journey lipstick in Fierce (which is on sale this month to celebrate Galentines). A beautiful red that looks great on everyone. Don’t be afraid to wear red! Cheers!

Nothing and Everything

6 Oct

img_4451The weather here in Michigan is changing. It’s my favorite time of year as the nights get cooler and the leaves change colors. I love fall. Over the past two weeks I’ve been in a little funk because with the changeover to fall my allergies start picking up and along with that and cancer, breathing becomes a little more difficult. I have had trouble breathing here and there since I got cancer the first time 10 years ago because of a paralyzed vocal cord from the first surgery. Now that my cancer is metastatic to my lungs, difficulty breathing is a little more urgent in the doctors’ eyes. Apparently even though my cancer is technically stable, since I have multiple lung nodules, there are possibilities of other things happening simply because my lungs are now compromised. Ugh. Over the past month I have been to the ER because of my breathing issues (all turned out normal besides still having cancer-still stable), and more recently my doctor thought I should go ahead and get a pulmonary function test which was not a party. That turned out pretty much as expected.

I am not in the mood to see doctors right now but because of breathing issues (which again are not new) I’ve had no choice, and again a reminder of cancer. Something I realized about myself over these past few weeks is that I’m really bad at resting and being still. I was never like that before. I mean, I was never someone who took naps but I’m pretty sure I could sit on the couch for hours staring at nothing. Now, not so much. My mind won’t stop spinning. I have a deep urgency about everything, being everywhere, doing everything I’ve wanted to do, not missing anything in regards to kid stuff and life in general. It’s so hard to be on the line between dreams, responsibility, possibility, and sadness-hard to describe. It all boils down to time. How do we spend it and who do we spend it with? Close your eyes for a minute and think about your life today; your family, your friends, your job, your home, now take a deep breath and imagine yourself  in an exam room with a doctor telling you that you have Stage 4 cancer, or you need a heart procedure, or you have MS, or whatever it may be. In a blink of an eye your life has changed it’s course to something you had not planned. Now open your eyes and exhale because you’ve been holding your breath. What would you do differently? From that point on what would your life look like? What if some things couldn’t change because of responsibility, what would you do today? In the late Paul Kalanithi’s book When Breath Becomes Air he says, ‘I began to realize that coming in such close contact with my own mortality had changed both nothing and everything. Before my cancer was diagnosed, I knew that someday I would die, but didn’t know when. After the diagnosis, I knew that someday I would die, but didn’t know when. But I knew it acutely. The problem wasn’t really a scientific one. The fact of death is unsettling. Yet there is no other way to live.’ Get it? Nothing changes yet everything changes so how are you going to spend your time?

img_4450-1I’ve been sad lately because there’s so much I want to do but I understand the facts of responsibility. I’m a wife and mom, I’m an employee, we have medical bills (obviously) and college bills so I can’t just tour the world or start a non-profit and help people. I get it but what can I change? What else can I do? This is why I’m restless. This is why my mind won’t stop. It’s kind of a lonely place to be, even lonelier when you try to pretend all is normal and the same as it always is or was because it’s not. I’m still grateful and I’m still forging ahead like there will be a thousand tomorrows because there could be. Today though, I’m seeking out the color amongst the gray because my heart’s been troubled and I know there’s so much beautiful color. I will soak in this encouragement from Ann Voskamp, ‘I have a Messiah who meets me in it, won’t leave me in it, and will carry me through it! We never cry alone. Go slow. Be God-struck. Grant grace. Live truth. Give thanks. Love well.’

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Photo cred: E. Petersen

Today I wear Bite Beauty Amuse Bouche Lipstick in Liquorice which is a deep dark red. This lipstick has lots of color and is fairly moisturizing. I chose this color because it’s dark like my mood but has that bit of red that reminds me that there’s still fire deep inside. Cheers!

Pain and Church

16 Sep

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I saw a friend the other day that I haven’t seen in years. After the initial surface questions and conversation she broke down in tears. She shared about the many difficulties her daughter has had from a lifelong illness and also shared recent difficulties in her marriage. She expressed her exhaustion, her sadness and her hopelessness; she is at the end of her rope. As she was asking me how I was dealing with having cancer again my heart was breaking for her because she looked so defeated. What was more heartbreaking was after sharing her pain she said one of the last places she wanted to go was church; she’s angry with God, she didn’t want to be judged, and she didn’t want to hear any ‘Christian-ese’ talk. Knowing some of my past struggles and now cancer again she looked me straight in the eyes and asked, ‘How can you still have faith in God? How can you not be angry?’ Tough stuff. When did church become ‘unsafe’ for the heartbroken, hopeless, and weary? Why do we sometimes feel like we have to put on our ‘best face’ to go to church? These are just a few of the questions I’ve been asking myself for awhile.img_4188

I have a confession. When I first found out my cancer was back a year ago July, I also didn’t feel like going to church for awhile. Sometimes even now, over a year later, I still feel the same way. ‘With so much effort being poured into church growth, so much press being given to the benefits of faith, and so much flexing of religious muscle in the public square, the poor in spirit have no one but Jesus to call them blessed anymore.’~ Barbara Brown Taylor, Leaving Church. I go to an awesome Christian church with great leaders and great people. I’ve been attending for over 20 years, have volunteered here, was on the worship team, and have gone on mission trips. I love it yet I wanted not to go after I got the news of cancer’s 4th return. Why? I can only speak for myself when I say that I didn’t want to put my happy, ‘God’s got this’ face on at a time when I felt raw, sad, and disappointed. I didn’t want to hear ‘Everything happens for a reason,’ or ‘God only gives you what you can handle.’  Phrases I’ve probably used before. Do we really think about things before we say them? I listened to a great interview with Dr. Caroline Leaf, a cognitive neuroscientist who spoke about this exact thing, watch it here. She says that Christians are so used to these words and phrases (‘Christianese’) that we have stopped thinking, have we? Maybe. These phrases, words, and easy responses sometimes take away from us listening, thinking and loving the people who are hurting. Words have power and when you’re hurting you hear every single word so when you are on the receiving end of these patent phrases that we use all.the.time. you can’t help but want to roll your eyes and think, ‘You have no idea.’ I’m sure it’s all well meaning.

So what was my response to my friend? I hugged her and stayed silent awhile. Then I told her I was so sorry she was in such pain and that I truly had no words. I told her to be gentle with herself, and that it’s ok not to smile. I look back at some of my pictures from the first few months post diagnosis and I’m smiling but my eyes are not. I told her I’m not mad at God and even though I don’t want to go to church sometimes I know that I still have God and more importantly He has me. I told her churches are filled with hurting people regardless of the shine of the facade but vulnerability and authenticity can only happen if we’re willing. I shared my pain and told her that illness and in her case, serious adversity can be lonely because most people can’t know exactly how you’re feeling. I told her that for me, that is the reason I can’t let go of my faith in God. At the end of the day if I don’t have faith that God is real, if I don’t have God to talk to and if I didn’t believe He loved me I would have nothing to hope for after this life and there would be no possibility of joy in crappy circumstances. How do you convince a broken person that God loves her? You start showing God’s love by listening and loving. ‘Tell the story of the mountain you climbed. img_4187Your words could become a page in someone else’s survival guide.’ I LOVE that quote from Morgan Harper Nichols. In my low moments I don’t remember many conversations but I do remember the encouraging notes, those who sit and pray with me, and the many hugs with no words…love. Can we think on our own and not defer to a Christian-ese phrase as a response to someone’s pain? ‘No one leads people to Jesus; He leads people to Himself. All the pressure’s off; just go love everybody without agenda.’~Bob Goff

Today I’m feeling the red lipstick just because. I chose Urban Decay Vice Lipstick in Love Drunk which is a deep red. Love the name, love the color. Cheers!

Blah

13 Sep
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photo cred: Leanna Vite Photography

 

It’s been awhile since I last posted and like everything else, the less you do something the further away you get from it. So many things I’ve wanted to write about have entered my brain and have exited just as quickly before hitting the page. Since my last post my daughter left for college and I’ve been feeling a little off. It’s so strange but I have to say again, there’s something about a girl. She was my sit on the couch and watch America’s Got Talent girl, my shopping partner (even though neither of us likes to shop too much), my Barnes and Noble girl, my foodie/loved to eat out girl, etc. I’m adjusting and so is she. Something not talked about too often is the sibling(s) left behind. The day we dropped her off I asked my youngest son how he felt now that his two blood siblings are gone and he replied, ‘lonely’. Yes, he has the fairly new addition of 2 step sisters but he grew up most of his life with just the other two. So, just when you’re thinking they annoy each other and want to stay away from each other and this may be a welcome change in home atmosphere you realize maybe the opposite is true for the sibling left behind. Sigh.

I’ve taken quite a bit of time during my 3 week writing hiatus to process my thoughts and feelings after saying good bye to my daughter and the change in home dynamics. It’s been bittersweet. I’ve finally been able to finish a couple books that have really got me thinking and grappling with different things faith related that I will write about soon and I’ve been doing decent on my commitment to take 5-10 minutes sitting in silence and meditating; focusing on a bible verse or a positive empowering quote. I have to admit, 10 minutes of focusing and not letting my mind wander is HARD STUFF!! All this and unfortunately I still have cancer on my mind (and in my lungs). It’s so weird but as long as my cancer is stable I am just viewing it as a chronic disease for now and forging ahead with my days. I watched a great clip of an interview with Karen Walrond who is a Leadership Consultant. Every morning she asks herself 3 powerful questions: 1) ‘How can I feel connected today?’ Meaning what one action today can connect me better with a friend, my kids, my spouse, etc. 2) ‘How can I feel healthy during the day?’ Drink more water, go to the gym, say no to the potato chips, etc. and 3) ‘How can I feel purposeful today?‘ Read the bible, clean out the closet, read another chapter, write a blog, etc. Just one action you can take during your day to answer each question, super powerful. I’ve been trying this and honestly on the days I have done this exercise my attitude at the end of the day is so much better. Try it and maybe write down your answers and look at them several times that day as a reminder.

I guess I’ve been feeling kinda blah since my daughter left. Yes I miss her but I think it has more to do with the changes and pace of life. My youngest will have his drivers license soon and when that happens I know I’ll see him less. Is it strange to already miss him before he’s actually gone? Bonus: the sun is always behind the clouds pushing it’s way through and img_1949because I’m a person of faith I know the Son is always there carrying me through. In my melancholy state earlier I ran through a list in my head everything I miss whether it be from cancer or just the normal progression of life; I miss all my kids being under one roof, I miss having younger kids who didn’t talk back, I miss singing-a lot right now (for a long time it was my passion and how I was most comfortable expressing myself but cancer took away function in a vocal cord), I miss playing the piano well (hard to do with a left hand I can barely feel because of nerve damage from radiation and surgery), I miss being able to do physical activity without trouble breathing, I miss the blind optimism of living forever (although still optimistic I have lots of time left, cancer just took away the forever part in the previous phrase), I miss eating whatever I want and not gaining weight, sometimes I miss silence yet sometimes I miss chaos. Told you it’s a weird time for me. I know I’m blessed. I have an amazing family and loving husband, awesome friends, I’m generally healthy, I have a great job, and a dream that is closing in on becoming reality…but sometimes…just trying to stay real here. Thanks for journeying with me 🙂

Today I wear Bite Beauty Amuse Bouche Lipstick in Chai which is a Mauve Brown. These lipsticks are soft and moisturizing. I chose this color because it’s a great color for fall and I because I also love chai tea lattes and it’s called Chai. Cheers!

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