
It has been a long time since I’ve written anything on this blog. Because of coronavirus and all of this time in quarantine, we’ve all been forced to sit and slow down and grapple with our thoughts (more than usual), at least that’s been true for me. I’ve personally felt incredibly busy and not busy at the same time; how can that be? Grief. Over the past few months I have spent quite a bit of time grieving. I am not talking about a debilitating state of grief, just a general sadness that has weaved through my days here and there. One of the best definitions I’ve found on grief is: ‘the conflicting feelings caused by the end of or change in familiar pattern of behavior.’ Umm, coronavirus quarantine in general is a change in familiar pattern of behavior.
Over the past few months, my oldest left for grad school in Florida, which is the farthest he’s been from home, ever. His college graduation didn’t feel real because it was online, but when I helped move him out of his college apartment then pack him up for grad school, that’s when it hit, a new phase of life for him..cue the mom tears. Then there was the release of my daughter and two step-daughters, sending them away to college, each one week apart; a junior, sophomore, and a freshman. My youngest is starting his senior year of high school but it was exactly one year ago this August that he had his stroke. Facebook filled my feed with memories from in and around that time. Seeing the pictures and re-reading the comments and narrative I wrote, was overwhelming and I could still feel every single emotion of my heart breaking. Gratefully he is doing amazing now. Kids grow up so fast and you’re never truly prepared to release them into adulthood and yes, it’s a grieving process every time one of them launches into the world on their own (or even when they get their drivers license and drive away alone for the first time). I know for sure you can’t hang on to them and hold them too tightly. We equip them the best we can and let them go to fly…hardest thing ever. Jen Hatmaker recently said, ‘We are raising the kids we have, not the kids we were. Let them zig where you might have zagged. Believe in their dreams. Believe in them.’
Then there’s cancer. I missed my March appointment because of Covid but was able to have my scans done in June. The cancer center was sad because at the time (and still), only the patient could go inside, no caregivers or support. The waiting room was half full of cancer patients alone. One elderly gentleman in particular had a panic attack when they told him his wife couldn’t join him for his appointment. He pleaded with the receptionist and said she was the only one who could understand what the doctor was saying and that she took all the notes. It was hard being around the ‘scared sick’ and I think if more people could be placed in those rooms for just a short amount of time with those people (the sick, the elderly, the afraid, the vulnerable) looking into their eyes, then wearing a mask would be a no brainer; not a political statement, not a fear based opinion, just plain love and empathy for others. Thankfully, the tumors that have taken residence in my lungs are still stable so cheers to another 6 months (until the next scan). Typically in the times leading up to a scan I have scanxiety and can think of nothing else. Now with the pandemic, the scan was just another thing I had to get done that day. So strange. Recently, Chadwick Boseman, most famous from starring in The Black Panther movie, passed away from colon cancer. That was devastating to me. It put a pit in my stomach and just made me sad for days. Grief back to the surface. Cancer sucks, this pandemic sucks.
I saw this question in an article I read recently: ‘How do you adjust to an ever-changing situation where the ‘new normal’ is indefinite uncertainty?’ While the rest of the world is trying to adjust to this indefinite uncertainty, I, a stable Stage 4 cancer fighter, have been living with this new normal for the past 3 years. Some days are awesome, some are ‘eh’, but all is well. Here are some tips for those of you who can’t think straight right now, from a girl that has lived in indefinite uncertainty for quite some time:
*wake up and smile (literally open your eyes and grin for 5 seconds~you’re alive)
*every few hours think of something you’re grateful for. Maybe just one thing at breakfast, lunch, and dinner then one more before bed.
*don’t be too hard on yourself
*Let yourself have a good cry every now and then because this new normal stinks
*be kind to others but more than that, be empathetic, put yourself in others’ shoes; everyone’s handling the situation differently and everyone’s grieving the loss of how life is/was ‘supposed to be’
*be aware and present each moment and let things go. All we have is today, right now, this moment. This is has been a hard one for me because I have teens/young adults and sometimes worry takes over. I am practicing letting them go to make and learn from their own mistakes while being thankful for today. Key word, practice
Pico Iyer says it this way, ‘The fact that nothing lasts is the reason why EVERYTHING matters.’
Nothing lasts, everything matters. You have this moment
The past few days have been hard. I’ve been trying to process all that has happened in America recently regarding race and it’s too much. When Covid started, it was Asians being blamed as being responsible, then the sickening killing of Ahmaud Arbery, Breona Taylor, the most recent horrific murder of George Floyd, so many more…and those are just what we’ve heard about. It’s been hard and disheartening for me because of my own experiences with racial discrimination and has brought to mind all the times I have felt ‘less than’ or ‘out of place’ over the years. My experiences are in NO WAY NEAR what black Americans deal with on a regular basis, and I’ve not felt the pain of injustice, but they are mine and they are stories of being yellow/brown, and not white, in America.
It’s week, I don’t even know anymore, of Covid quarantine. I have semi-adjusted to the daily web based calls for work, various networking calls, dog walks, exercise, cooking, etc, and of all those things, I don’t want to cook anymore…I’m bored with my cooking. I have developed a couple addictions; one to pork rinds (the ‘healthy’ keto kind from Whole Foods), and I can’t get enough of a cleaning instagram account called @gocleanco. It’s seriously a before and after gold mine of house cleaning. No, I haven’t deep cleaned my house from top to bottom nor have the desire to, but I love watching the cleaning stories on this account and I did buy powder Tide for the first time ever (if you watch, you know). It’s weird.
Starting week 6 of our quarantine but who’s counting and how is everyone? I have to say, I have run through the gamut of emotions. The first week or so I was just busy; busy preparing the house for all of the kids to be back (the older 3 are in college and 1 was studying abroad), getting groceries, preparing the home office to transition to 100% work from home for both me and my husband, etc. The second week was still busy but I felt a little more anxious and maybe depressed. Week 3 was when my anxiety peaked and I think it’s when I cried the most, not to mention I think it may have been the week when all the kids started really getting stir crazy. Remember, they are all older teens and young adults and are all used to their independence so being stuck with all their cars in the driveway is a little crazy. Yes, we have lots of cars in the driveway and street so it looks like we’re having a party…trust me, it’s no party in here.
going to grad school to become a Doctor in Physical Therapy. Here’s the clincher, he was going to start grad school in the fall but recently got accepted to another school he’d rather go to which starts in May…MAY. They have redesigned their first semester to have it all online, then he moves for in person classes for the fall semester (hopefully). It’s a lot all at once. I’m not sad that he’s grown up and moving to another state far away for grad school, I’m grieving the fact that I have Stage 4 cancer and I want to soak in every single moment and my first born child graduating college is a ceremony I just wanted to see, cry, and soak in. Yes, it’s about me, but it’s about him too because I know how hard he has worked to do well and finish an undergrad science degree in the honors college in 4 years. Sigh. This Friday, the university president will have a Facebook live commencement event; thank you social media, he graduates via Facebook.
time he (and I) left the hospital, it was fall. We lost summer. Now with Covid, by the time it’s over, it will probably be summer, so we lost spring too. Here’s the deal, IT’S A BLIP IN TIME and with Stage 4 cancer, I love and LIVE for ALL blips in time and having time in general, by trying to be grateful always, and trying to always find the magic. I emphasize ‘trying’ because it can be really hard sometimes. This is just a blip in time to be a little less selfish and a little more self-less for people like me, or your parents/grandparents, or even for a complete stranger. ‘No one should seek their own good, but the good of others.’~1Cor 10:24
For the last couple of years I’ve lived with a steady undercurrent of uncertainty and occasional fear and sadness from a diagnosis of Stage 4 metastatic cancer. Daily, I have prayed for more time, less fear, maybe for my cancer to miraculously disappear or at the very least, remain stable for the next 50 years. Cancer has forced me to face mortality, the fragility of life, and the real possibility of death sooner rather than later. One author compared living with Stage 4 cancer to walking around with a bomb strapped to your chest not knowing when it may explode. Now add coronavirus.

amazing doctors, nurses, and support staff. About 4 years ago one of my original doctors that helped navigate my cancer journey retired and I cried my eyes out. He was the one who called me with the news that my cancer had returned the 2nd and 3rd time. He researched new therapies and called different surgeons and oncologists; this busy doctor made me feel like I was his only patient for the 6 years that I saw him. I love all of the people that cared/care for me. What a difficult job they have trying to comfort and encourage patients, while also doing their jobs and what’s medically necessary. The impact that caregivers have on our lives is pretty astounding. Having cancer comes with baggage; fear, sadness, uncertainty~ it’s a dark time and medical staff play an important part. No matter what is happening in their lives they are tasked to care and love hard. Dr. M and Dr. D, my prayers are with you and I love you both hard.
part time getting all A’s. He still gets a little tired writing but that is coming along. Here’s my mom struggle…before the stroke he was a normal teen boy doing the push and pull; the pushing of my nerves while trying to pull away into his own adulthood. I get it, I’ve had to let go of my other two and that’s how it goes. After the stroke, he became my baby again. It was an incredibly difficult time and sometimes when I close my eyes I can still see him lying in that bed in the ICU and it makes me cry. There are things I can’t even talk about without choking up including the last night we spent at the hospital together, praying, crying, and talking about all that had transpired, before
being discharged to come home. Now that he’s about 95% back to being a normal teen boy, there’s that push and pull again, and I have to relearn it. As one radio DJ said, it’s like a hard break up. For me it’s like breaking up, getting back together, then going through an even harder break up again. Makes me sad but I know it’s necessary. Motherhood is hard and time flies. Besides Alex, my oldest is graduating college in a few months and planning grad school farther away, and Audrey is studying overseas this whole semester. It’s a mixed bag of sadness and joy.



what will hopefully be his last procedure having to do with his stroke last summer. Afterward, while Alex was in the recovery room, the doctor came in and told us that all of the vessels in his brain looked normal and that he shouldn’t have another stroke due to AVM in his future. Done. A few hours after leaving the hospital I was alone in my car headed to the grocery store and I started to cry which then turned into weeping. I couldn’t stop. I realized that since Alex’s stroke in August, I was remaining strong and focused on him and his recovery, trying to keep his and my own spirits up, and now, I was letting it all go. All I felt was an overwhelming sense of gratitude. August and September were a blur of worry, grief, and tears and now, these were tears of joy, gratefulness, and relief.
focus on my own stuff, which was kind of a blessing. Here’s the lesson in that, when you focus on others you focus less on yourself, it’s a good thing most of the time. I honestly didn’t even think about my scan until the night before. I got the results today and I’M STILL STABLE!! My cancer is still there but slow growing and as my doctor said in his text, ‘nothing to worry about.’ Tears, actually, lots of tears.
