Tag Archives: external beam radiation

It Is Well

2 Dec

sky

The month of December has played a big part in my cancer experience. It was December 2007 when I first felt a lump at the base of my neck which started this whole journey. December 2009 I was told my cancer was back for the third time. December and Christmas now have both happy and sad memories and I find myself feeling reflective always praying for a better New Year. When I was in the hospital recovery room after my first surgery I had a vision or a dream, whatever you want to call it. This is something I have only told two people. One, a nurse who came to visit me every day in the ICU after my first radiation treatment, the other, a friend of mine who happens to be nurse, just out of the blue because she posted something on Facebook that brought up this particular memory.

My first surgery was unintentionally 7 hours long because of the amount of cancer in my neck. My nerve was cut leaving my right vocal cord permanently paralyzed. Without me knowing (obviously), my family was told devastating news..cancer and prognosis was bad, voice was probably gone, I would be in the ICU for a couple days and in the hospital for a few more days after that. It took awhile for me to wake up in the recovery room after the long surgery but I have a VIVID memory prior to waking up. If you’ve been following my blog you know I am a singer. What I saw before opening my eyes was me on a stage under a spotlight. I was alone, on the stage, in front of a black curtain and all I saw was the bright light and nothing else, no audience. I was singing a capella, no accompaniment, an old hymn called It Is Well With My Soul. All I felt was joy and peace as I sang it to no one, face in the light. When I opened my eyes moments later to see my husband teary eyed with bad news all I could feel was calm, I cry thinking about it. Here are some of the lyrics:

When peace, like a river, attendeth my way,
When sorrows like sea billows roll;
Whatever my lot, You have taught me to say,
It is well, it is well, with my soul.

  • Refrain:
    It is well, with my soul,
    It is well, it is well, with my soul.

Though Satan should buffet, though trials should come,
Let this blest assurance control,
That Christ has regarded my helpless estate,
And hath shed His own blood for my soul.

So here I am today, December 2012. Life has had its challenges but no matter what has happened and what will come it is still well with my soul. In the hustle and bustle of the holidays and as we close out another year, take a deep breath and be thankful for life. Happy December!

Today I wear MAC Sheen Supreme lipstick in Bare Again which is a pinky beige color. This is my favorite MAC formulation because it’s super moisturizing but also has lots of color. I chose Bare Again kind of for the name because technically with the memories of my past Decembers along with the sheer busyness of this season I sometimes feel raw or ‘bare’. It is also a good ‘nude’ type lipstick, not too beige, and a little ‘pinky’. Cheers!

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Too Busy

28 Nov

Wow, does life ever just ‘coast’? For those who live in America, I pray all of you had a Happy Thanksgiving. A few things have happened the past couple of weeks that have dramatically changed my schedule, all while starting and adjusting to a new job!  First, my oldest son (who broke his hand last month and had to have surgery and pins) got his stitches taken out on a Friday and was trying out for the high school freshman basketball team the following Tuesday. Was I a nervous wreck? Of course. Well, he made the team and is so excited. That act alone added daily practices (including weekends and school breaks) and games from now until March. My daughter was in the school musical last month which was awesome. She did a great job and was happy to be a part. When we asked what she planned on trying next she said maybe some after school clubs because she didn’t really enjoy sports…ok. Well, out of the blue she decided to try out for the 7th grade basketball team and by surprise, she made it! She came home shocked herself and said, “I don’t know what happened.” So, tack on another practice every day plus games through February (on top of dance class). Then of course my youngest, yes, he is playing basketball too, practice twice a week plus two games a week. Never has my schedule been more packed. Today I am writing on the importance of rest. Besides feeling like a taxicab at night and weekends, I am working full time and am now trying to get ready for Christmas…it can be too much. What are some of the top side effects of stress and not enough rest?  Weight gain, sleeplessness, and mood swings…yes, yes, and yes. We have now entered the highest ‘stressful’ seasons by itself and without enough rest and relaxation, it could be very bad for your health. Take the time to sit still (which is hard for me to do too), breathe and be thankful, it helps the attitude.

On another note, I was thinking about those who might be struggling right now, like one of my old customers who lost his son this past summer from cancer. Life is hard. People have asked me how I hold on to hope through all the ups and downs of cancer. My answer is simple, sometimes it’s impossible but others have been there to fill me with hope or fill up my tank so to speak. Since the beginning of my cancer journey I have received numerous phone calls, cards and e-mails, some even from strangers, and I have saved them all. When I am feeling down all I have to do is read a few emails or cards and I start feeling that hope again. I also 100% believe that God has a plan and my hope is in Him. Sometimes we just need a word of encouragement to remind us how loved we are or how much we matter and when we feel that hope ourselves, we can share it with others who may need it. Can you think of anyone who may need a card or a text for a little encouragement? Why wait?

 

Today I wear Lancome L’Absolu Rouge in Bordeaux. This is my favorite formulation of Lancome lipstick because it’s moisturizing and smooth. My fave red, Merlot, comes from this formula , but today I chose Bordeaux which is a soft burgundy color with lots of shimmer…perfect for the holiday season. I love it!

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Changes and Thankfulness

18 Nov

When I started my sales career after college over 21 years ago I was assigned a university hospital as one of my accounts. I remember being fresh out of college and placed in a city (and state for that matter) that I was unfamiliar with to begin ‘adulthood’. There were many changes like a phone bill, an electric bill, rent. etc; and I remember that first week driving through this college campus to get to the hospital to do my job. I cried. It was a huge transition and as I looked out at the college kids walking around with their backpacks (and some in pajamas), while I was in my suit, I couldn’t remember why I was ever ‘stressed’ in college, and I asked myself,’am I now doing whatever it is I’m supposed to do when I grow up?’ I wanted to go back. Fast forward to this week. I was assigned another university hospital with my new job and as I drove around the campus, I was filled with gratitude, it was like deja vu’ from when I first started. I smiled thinking about those old feelings in college, will I get a job? where will I end up? am I doing the right thing? why did I change my major? Even now some of those questions linger but I do know that life goes on and we follow a path based on our own mistakes and decisions and ultimately where God leads us.

Also this week, an old friend was asking about a television show I was on in the 80’s. It spurred conversation between a few of my other friends on Facebook and brought back fond memories of my past. Since I have to drive quite a bit for my new job, I brought a few CD’s I had of musicals, Les Miserables, Miss Saigon, Rent…and as I tried to sing along with the soundtracks, for the first time in a long time I was a little heartbroken. I miss my singing voice. I have always loved music and was fortunate to do a lot of singing over the years and now, after cancer took away a vocal cord, it’s not so easy and I was feeling a little nostalgic and sad. I have to say though, it was because of my singing and my inability to reach some of the notes that I found my cancer (massaging my neck after singing somewhere because my throat was so sore).

So this week, as I celebrate Thanksgiving with my family, I am thankful for my singing because in a strange twist of fate, it’s what saved me. I am thankful for a career that allows me to talk to and meet all kinds of people. I am thankful for the journey God has taken me on, past, present, and even future. I am thankful for my family and friends; for all those who support me through this blog and my Facebook fanpage. Most of all, like all survivors, I am thankful for life. Blessings to all of you and Happy Thanksgiving!

Today I wear Mac Sheen Supreme Lipstick in Can’t Resist. I LOVE these ultra moisturizing full color lipsticks! They feel almost like lipbalm, but a tiny bit thicker and are a full color lipstick! Can’t Resist is a plummy-red that is a great color for fall. I chose it because not only do I love the color, but I also love the name. When I think about my life and all that’s transpired I can’t resist smiling. Feeling blessed.

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Stained Glass

12 Nov

 

I read this great quote today (thank you to I Had Cancer), ‘People are like stained glass windows-they sparkle and shine when the sun is out, but when darkness sets in their beauty is revealed if there is a light from within.’

Last week I was at a meeting getting to know my new co-workers from across the country. Since the company is quite small, it was easy to meet and get to know the other 40 sales reps in the room. Reading the quote above reminded me of the week. We were all ‘stained glass windows’; we all had our ‘good’ clothes on, were on our best behavior, and for the most part, always had a smile on our faces. It was great meeting new people and learning a little about their backgrounds. As I was getting ready to leave my hotel room and meet everyone I realized how far I had come since walking into my first meeting 21 years ago. I was a shy introvert who struggled with a bit of social anxiety. On a personality test at a management meeting, the evaluator said I was a natural introvert, but forced extrovert (maybe that’s why I love acting?). In the past, I was perfectly comfortable with small talk and keeping people (especially those I work with) at a safe distance, but this time was different. I believe God has you where you need to be and I don’t believe you meet people by accident; I believe it now more than ever post cancer. So here I was, an open book, pressing in. It doesn’t take much these days to open someone up, people want to share, they want to be hugged, they want someone who can look them in their eyes, we just don’t do it enough anymore…fear of hurt? Anyhow, the stories I heard from different people, wow. Families hurt by divorce, a mom with cancer, a mother-in-law in her last days, others starting over and afraid of the unfamiliar. It was overwhelming, heartbreaking, and encouraging. On the last day I was speaking to one of my new co-workers (and new friend), and he asked how I found out so much about people. It was simple, I asked then I listened. It’s the same thing I want, someone to ask and listen, truly someone who cares. So what about you? Where has God placed you? Who are in your sphere of influence? We can’t all be Mother Theresa or Billy Graham, but we do have people right in front of us that want to know that they matter. I know because I’m one of them. Reach out, you may be the only one.

Today I wear an old standby Dior Addict Lip Glow. I LOVE this stuff. This is the only product that hits the bottom of the tube and I re-purchase. It is an incredible lip balm that brings out the natural pink ‘glow’ of your lips. I chose it for today because of the quote “…but when darkness sets in, their beauty is revealed if there is a light from within.” Cheers!

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Another Birthday

25 Oct

Another birthday, another year older…wiser? Who knows. Every birthday since cancer and the bad news from the original surgery has been a BIG deal to me. When you are told by your physician that your prognosis doesn’t look good and quite possibly have less than a year, every moment counts. Since then, even though the cancer has come back a few times, my prognosis has been great and now here I am almost five years after my first surgery, time passes so quickly. When I walked the survivor lap at Relay for Life last year, the sign that pushed me over the edge and made me cry said, ‘I Love Birthdays.’ It’s true, today was pretty emotional. Today, like every birthday, I thought about everything that had transpired over the year and I also thought about how I have changed since cancer. Cancer has taken away a vocal cord which makes it more difficult to breathe and sing and talk sometimes, but I still can. Cancer has taken away a little bit of confidence in my body and health, but I can still run. Cancer has taken away a little bit of magic from my kids’ lives; the magic that helps them think their mom is invincible (at least while they’re young); remember they were only 5,7, and 10 when this all started. This week I was able to spend some time with a college friend and as I sat with her I realized we had been friends for over 20 years and it was awesome. I miss that. I miss the time I had when I was recovering after each surgery, the times when I couldn’t speak and just listened to people and cultivated relationships. We all wish we had more time right? I actually miss some of my caregivers who were some of my biggest support considering I was seeing them almost every week for 4 years.

What did I get from cancer? A new writing voice and the passion to hear people’s stories and understand where they come from. A stirring deep in my soul that wants to change the world. I value time and peace and every relationship that I have, past, present, and even future. I have released control over to God and now walk around with a heart so open that at times it feels broken. Most of all, I have less fear and more faith. I am overwhelmed and so grateful.

Today a friend asked, “What lipstick does one wear on their birthday?” Today I chose Loreal Color Riche lipstick in Divine Wine which you can get at any drugstore. In my humble opinion, Loreal is one of the better drug store brands in terms of color choices and consistency (I think it’s actually owned by Lancome). I chose this color because it’s an easy berry shade on me with a little bit of a brown undertone and of course the name. Celebrating with a nice glass of wine. Cheers!

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Bathroom Magic

24 Oct

This week’s topic in my blogging group is “in my bathroom”.  I believe the bathroom is a magical place (I know, save the snarky comments). I mean it. It is a place of transformation and sometimes resolution. It is the place where my day starts and where my day ends. When I open my eyes in the morning, walk into my bathroom and look in the mirror, I think about what the day holds, who I may see, who I may speak to; and then I start the process of freshening up to face a new day with a new attitude. You may find this strange but we have two lights in our small bathroom; one bright light, and one dim light over the shower. I prefer to only have the dim light on in the morning because, as I tell my husband, ‘it is my spa moment.’ It sounds creepy but I like to start the day really peaceful and relaxed and showering to a dim light helps. At the end of the day my bathroom is the place where I wash the day off and think about the events which took place. This I do with the bright light. I like to see my make up come off and how my teeth look after they’ve been brushed and flossed. Being a mom, the bathroom is also a place that has seen my many emotions. I have danced, screamed, and cried in there. Second to my closet, it is my place of solitude where I can grab a few moments to organize my thoughts, read, or just be brain dead before tackling what may be outside my door. I don’t know, I guess my bathroom is a place of change and cleansing; changing into the person the world sees then cleansing myself free of the ‘dirt’ I may have attracted during the day. Who knew talking about a bathroom could get so deep? My husband built the bench pictured above out of the leftover tile we had when we re-did the bathroom. It’s small and sturdy and allows me to gather my thoughts or even read in the bathroom sitting on something other than, well, you know.

For today’s lipstick I chose Aquaphor. I know I’ve mentioned this product before but I love it! I actually swipe this on my lips before I go to bed so that they are lipstick ready the next morning! Rise and Shine!

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Why Worry?

1 Oct

A few days ago I was talking to a customer whom I haven’t spoken to since June. His son was diagnosed with a brain tumor a few years ago right before my second recurrence and surgery for cancer. Last June he told me his son was doing much better and they thought he was finally in remission. When I asked him the other day how he was doing, he told me his son passed away in July, the cancer took a turn and went into his bones. In one month’s time his four year old was gone. As he told me the story of how he and his wife were comforted by the fact that he was no longer in pain and they were able to hold him in their arms until he finally passed, I sat speechless and breathless with tears in my eyes. When he was finished we were both quiet for awhile and he looked at me and asked, ‘You don’t worry too much about anything anymore do you, not much can stress you out, right?’ Hmmm, I do worry about my kids, but there’s not much anymore that can freak me out. If I’m not running exactly on schedule or if I can only check one thing off my ‘to-do’ list so be it. Every day we have obstacles and opportunities thrown at us and we have to deal with it as it comes. Can it get exhausting? Of course, but then again, even some of the best laid plans fail. I more than ever believe that sometimes God has a plan and sometimes it’s not the same as ours, sometimes you just have to trust it’s the right plan and you move forward. That simple word ‘trust’ is so freeing. The fall sky has been so amazing, it is a reminder that there is someOne much bigger than myself. Here are a couple pictures:

Today I ran a race with my daughter and a close friend going through a difficult time. The three of us ran for different reasons; my daughter ran because well, I think she wanted to prove to her brothers and herself that she is athletic. My friend ran because I promised her we would take it slow and that she would feel great but also because I forced her to  do something for herself. Today I ran because running helps me feel like I have a little control of my body and although it’s super hard to breathe, it stills makes me feel free…hard to explain. Today we ran as Team Lipstick Journey and swiped on red lipstick at the finish line. In the future I would love for the team to grow and possibly start raising funds for cancer charities. Who wants to join the team? One condition, the red lipstick goes on.

Today I wear Make Up Forever Rouge Artist Natural lipstick in N47, brick red. These lipsticks are moisturizing and semi-sheer and this is the one we swiped on after the race! Cheers!

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“B”

15 Sep

Every time you meet someone you never know how you may impact their life or adjust their story; or even more importantly how they may change you.  When I was doing my radiation treatments I befriended a fellow patient who I’ll call ‘B’.  When you’re getting radiation treatments you go at about the same time every day because they want the level of radiation to remain consistent throughout the day. Of course then, you see the same people in the small radiation waiting room every day; some were only there for a few treatments or a few weeks, but ‘B’ and I were there every day for the whole seven weeks at the same time and our stories kind of run parallel. We both had an aggressive thyroid cancer that spread, we both had a parlyzed vocal cord, and we both had several surgeries. Thanks to Facebook, we found each other and now are able to support each other in our post cancer paths through e-mail. Recently I heard from both him and his wife because he suffered a small setback. Like myself, it has been increasingly more difficult to breathe and swallow, but for him, it was becoming impossible. He went back to the hospital and like me was told it was scar tissue that has built up since radiation. He suffered some complications and is still trying to recover with a new trach in his neck to help him breathe. My heart is so heavy because I feel his same fear and heartache. He talks about all the things he still wants to do with his family and I completely understand. Even though I only saw him for a half an hour every day for seven weeks, I care for him and he and his story have deeply affected me.

I know we are in a world of social media that has sucked us all in, and sometimes it can be viewed as bad because we have lost that personal face to face communication and touch, but in some ways it has been a blessing. I have been able to stay in touch with this friend who shared in the struggle of radiation and cancer. I have forged some deep friendships with people who I have never met; people who like me find it easier to express their thoughts and feelings through writing (and music). People like those in my bloggging group who leave their heart in their writing, I love them (you guys know who you are). For my special friend I met on Twitter…you are AWESOME! To my Thyca sisters Sarah, Bridget, Megan and others who I only know through Facebook and blogging…it’s awesome to know we all had the same fight and it was never easy! Yes, these virtual friendships are incredible and I’m thankful. Nothing is better than the personal face to face, but all friendships, if you put yourself out there, are wonderful. Each person has placed their imprint on my heart and it’s overwhelming. Each person you meet, even  briefly, can adjust your story, change your path, change your way of thinking…think about the power you have to do the same for them. Use your words wisely, love openly and the love and friendship you get back will amaze you. Thanks for being here and being a part of my story.

Today’s lipstick is Clinique Chubby Stick in Pudgy Peony which is a sheer fuscia pink. I like these glosses because they feel like lip balm and this color is just fun. They are ultra sheer but shouldn’t friendship be like that? Transparent? Cheers!

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Impulse

12 Sep

Coming home from work today I saw one of those giant flocks of small birds flying in different formations over a field. You know the ones I’m talking about? I think they are sparrows, but literally there are hundreds flying and weaving, landing, turning, it’s quite the sight to see. Against the backdrop of the clear blue sky, it was beautiful. While watching (and driving), I noticed that as they flew in formation, it seemed that one bird would fly on impulse another way; then one, two, a hundred would follow. It occured several times within seconds.

School started last week for my kids and there has been quite a bit of discussion on popularity in my house..with a pre-teen and a teenager, well of course. “Why is so and so popular?”, “what makes people popular?”…oh yeah, I forgot about all of that pressure. I was never the popular one but I was always nice to everyone which made me ‘well known’ in many different groups of my large school. Today when I watched the birds I was able to talk about that to my kids in terms of popularity. I told them that the birds all flew in a cluster but there was always a leader, in a matter of seconds though, another bird would impulsively go a different direction then the cluster would follow. Do you want to be part of the pack following the popular kid (or lead bird) or the one that breaks off and does your own thing, maybe some come along beside you, maybe not, or maybe new people show up? It’s much more fun to do your own thing and not just be a follower, plus, (as evidenced by the birds) the leader lost his status within seconds. Popularity is fleeting and comes and goes like the wind. I told them to stand firm in who they are, follow their passions, and love people. Everyone has a story and a reason, take time to listen and invest in people. It’s hard to be a parent, I’m sure we’ll have this discussion again, maybe I’ll see something else that I can use as an analogy.

“Here’s to the crazy ones. The misfits. The rebels. The troublemakers. The round pegs in the square holes. The ones who see things differently. They’re not fond of rules. And they have no respect for the status quo. You can quote them, disagree with them, glorify or vilify them. About the only thing you can’t do is ignore them. Because they change things. They push the human race forward. And while some may see them as the crazy ones, we see genius. Because the people who are crazy enough to think they can change the world, are the ones who do.”
― Apple Inc.

Speaking of impulsiveness, I have purchased three lipsticks in two days ,one’s going back and another is a refill on my fall favorite. My color for today and the fall favorite I’m talking about is Lancome L’Absolu Rouge lipstick in Merlot. This happens to be the perfect deep red shade for me. Also the consistency is VERY moisturizing which I love. This is a lipstick I buy every year for fall and winter and is perfect if you have tan skin. Incidentally a perfect bright red for more of a porcelain to medium skin tone is Nars Velvet Matte Lip Pencil in Red Square. It’s an awesome color but unfortunately for me it makes me look like a crazy woman…too bright, sigh, I’ll still wear it.

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It Is What It Is

5 Sep

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I hate that phrase by the way, ‘it is what it is’. My arm hairs bristle every time someone says it. I think because I view it as a cop out, or an excuse, like things can’t change or be changed. I guess sometimes that’s true.

I had my doctor appointment last Friday to finally discuss the ultrasound and MRI findings from a few weeks ago. If you recall, he was on vacation immediately after my ultrasound so I haven’t spoken to him about the results and possible next steps. Well…here’s how it went….Doc: I think you’re good for now, see you in a few months. Me: What about the growth the radiologist saw? Doc: Well, you can do a PET scan but it will say the same thing, abnormal tissue, it’s up to you. Me: What do you think I should do? Doc: Check if it’s grown in 3-6 months…if it has,it’s probably cancer, if not, it’s probably just scar tissue. Besides, no surgeon is going to want to go back in there right now. Me: It’s been 2 and a half years since surgery and radiation, when does scar tissue stop growing. Doc: Now. Just live life as normal and I’ll see you in a few months.

That’s it. Life goes on. Isn’t that true though about anything? Illness, you get fired or laid off from a job, your child leaves for college, you miss an appointment….life ALWAYS moves forward. How do we handle that? There’s only two choices, positively or negatively. I have to choose positive, even if I’m kicking and screaming, because I trust God has a plan. It may not be the same plan I’m thinking, but His wheels are in motion and I’m there for the ride.

Today I wear Bite Beauty Honey Lip Lacquer in Aurora which is of course, red. These are interesting, I saw them on display at Sephora last weekend and had to try. They are all natural and long lasting, actually made from 100% honey. These are high shine glosses and for me, a little sticky but beautiful nonetheless. I chose red because, well, it’s a bold color always reminding me to live out loud with no fear. By the way, I’m done being angry…it gets tiring after awhile (remember my last blog called ‘Tired?’). So here I am, living the dream (another phrase I hate). Cheers!

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