It’s been over a year since writing this blog.
When I was diagnosed with Stage 4 metastatic cancer in 2017, I thought it was the worst thing in my life that could’ve happened. This was my 4th recurrence, my youngest was in middle school, my others kids were not much older. I spent lots of time staring and hugging my kids as much as they would let me, and of course, crying and praying not just for more time, but at the very least, to see that youngest child graduate high school. Two years after my diagnosis, that youngest child had a devastating stroke which left him right side paralyzed and needing brain surgery to remove a tangle of arteries and veins in his brain. 2020 brought the global pandemic which messed everyone up… in the world. Then I became an empty nester with all the kids far away, and in 2022, just after Thanksgiving, we rushed my dad to the hospital thinking he was having a stroke because he kept dropping his fork at breakfast. He walked himself into the ER and 2 days later he was confused, couldn’t verbalize properly and was diagnosed with CNS Lymphoma quickly taking over his brain. He passed away 11 weeks later in 2023 and then our beloved 7 year old dog who had been by my side throughout the heaviness of my diagnosis, my child’s side after bringing him home post stroke, the joy of the family while on lockdown, who comforted us while we stayed around my dad in home hospice, died suddenly just weeks after burying my dad. This year started for me with a sudden lay off on a Monday afternoon; no warning, just a call letting me know I, along with my boss and others, were done after a reorganization. These were the big ones but I can tell you there were many other frustrations, heartaches, and not so great things that happened weaved throughout the days, weeks, months, and years.
In my head, I had to keep going strong with a smile on my face. I worked hard, kept my chin up, started and ran The Lipstick Journey and went to events and pop ups, I volunteered, went to work, kept smiling and ‘people pleasing’. Motherhood is 24/7 so there were still meals to plan, dances, college drop offs, FAFSA forms, travel sports, etc. Becoming an empty nester in 2021 around the same time menopause hit brought grief to a whole new level. The sudden quiet house with mostly empty rooms after years of chaos hit me especially hard because I have cancer and how would I get more time with the kids if they were leaving?…Especially after the heels of the pandemic; stuck all together for a long time and then they were gone. Cancer feels like a ticking time bomb and the emotional toll of that as the base and all the other big things that happened took me and my energy down. Social media took my thinking brain away with too many continuous dopamine hits leaving me in a stupor. Grief caught up because it never really goes away. I stopped writing.
The good news. My cancer has been stable for 8 years. STABLE. EIGHT. YEARS. Those pesky nodules on my lungs haven’t grown or spread. Yes, they’re still living, but so am I. Fun fact, today is scan day; every 6 months, still. My child who had the stroke just before his junior year of high school? He made a full recovery and graduated college with honors this past May and my wish to see him graduate high school had me seeing him graduate college (obviously there were tears). The other kids are living their best lives and although none of them are near, I am now in a place of gratitude for raising amazing and independent human beings. There will always be hard days when my mama heart aches to be near them but mostly I’m excited for them and grateful they are good people and are independent. We got a puppy who will soon turn 2 and he’s the best doggie. I got another job quickly after the lay off and although it’s not my ideal situation it has been a blessing. Although I loved The Lipstick Journey lipstick company, I decided to close after 5 years. It was an amazing run and I needed it. The stories of other cancer thrivers who reached out to me lifted me up and the connections I made and support I felt, all incredible. No regrets and still wearing the lipstick. Just like heartache and sadness weaved through, there were plenty of joy moments-sometimes I just had to look a little harder. ‘Our circumstances shouldn’t narrate our stories.’~Lori Gottlieb
Ok too many words. I haven’t written in over a year but I FINALLY feel like I’m coming back to myself and I’m excited getting to know this current version of me. I feel joy and hope breaking through the muck that’s been weighing on me. It took this whole year (maybe even more) to get back here. How? Waking up EARLY and keeping a morning routine of silence, prayer, gratitude journaling, and reading poetry (you can’t read a poem quickly). I take long social media breaks and I can LITERALLY tell the difference on the days I’m not scrolling. I’ve mostly only said yes to the things that I want to do and that bring me joy. I try really hard to stay in the present moment, not worrying or planning the future and not dwelling in the past. Living with cancer has made this part easier. When you understand the brevity of life, everything becomes a little more special. Life will always be filled with inspiration AND tragedy, good AND bad, joy AND grief—all of which forms us and we carry in our bodies, no one is exempt. Kintsugi is the Japanese art of repairing pottery with gold; the cracks are part of the object’s history making it more beautiful for having been broken. My comfort is through all things, God is with me, He is the gold holding me together and it’s what’s beautiful. David Gate said in one of his poems, ‘In the accumulation of loss, retain an affinity for joy and know that some truths are only illuminated by tears.’ There have been many tears but despite heartache there are many moments of sweetness if we can just sit and open our eyes.
It’s week, I don’t even know anymore, of Covid quarantine. I have semi-adjusted to the daily web based calls for work, various networking calls, dog walks, exercise, cooking, etc, and of all those things, I don’t want to cook anymore…I’m bored with my cooking. I have developed a couple addictions; one to pork rinds (the ‘healthy’ keto kind from Whole Foods), and I can’t get enough of a cleaning instagram account called @gocleanco. It’s seriously a before and after gold mine of house cleaning. No, I haven’t deep cleaned my house from top to bottom nor have the desire to, but I love watching the cleaning stories on this account and I did buy powder Tide for the first time ever (if you watch, you know). It’s weird.
Starting week 6 of our quarantine but who’s counting and how is everyone? I have to say, I have run through the gamut of emotions. The first week or so I was just busy; busy preparing the house for all of the kids to be back (the older 3 are in college and 1 was studying abroad), getting groceries, preparing the home office to transition to 100% work from home for both me and my husband, etc. The second week was still busy but I felt a little more anxious and maybe depressed. Week 3 was when my anxiety peaked and I think it’s when I cried the most, not to mention I think it may have been the week when all the kids started really getting stir crazy. Remember, they are all older teens and young adults and are all used to their independence so being stuck with all their cars in the driveway is a little crazy. Yes, we have lots of cars in the driveway and street so it looks like we’re having a party…trust me, it’s no party in here.
going to grad school to become a Doctor in Physical Therapy. Here’s the clincher, he was going to start grad school in the fall but recently got accepted to another school he’d rather go to which starts in May…MAY. They have redesigned their first semester to have it all online, then he moves for in person classes for the fall semester (hopefully). It’s a lot all at once. I’m not sad that he’s grown up and moving to another state far away for grad school, I’m grieving the fact that I have Stage 4 cancer and I want to soak in every single moment and my first born child graduating college is a ceremony I just wanted to see, cry, and soak in. Yes, it’s about me, but it’s about him too because I know how hard he has worked to do well and finish an undergrad science degree in the honors college in 4 years. Sigh. This Friday, the university president will have a Facebook live commencement event; thank you social media, he graduates via Facebook.
time he (and I) left the hospital, it was fall. We lost summer. Now with Covid, by the time it’s over, it will probably be summer, so we lost spring too. Here’s the deal, IT’S A BLIP IN TIME and with Stage 4 cancer, I love and LIVE for ALL blips in time and having time in general, by trying to be grateful always, and trying to always find the magic. I emphasize ‘trying’ because it can be really hard sometimes. This is just a blip in time to be a little less selfish and a little more self-less for people like me, or your parents/grandparents, or even for a complete stranger. ‘No one should seek their own good, but the good of others.’~1Cor 10:24
amazing doctors, nurses, and support staff. About 4 years ago one of my original doctors that helped navigate my cancer journey retired and I cried my eyes out. He was the one who called me with the news that my cancer had returned the 2nd and 3rd time. He researched new therapies and called different surgeons and oncologists; this busy doctor made me feel like I was his only patient for the 6 years that I saw him. I love all of the people that cared/care for me. What a difficult job they have trying to comfort and encourage patients, while also doing their jobs and what’s medically necessary. The impact that caregivers have on our lives is pretty astounding. Having cancer comes with baggage; fear, sadness, uncertainty~ it’s a dark time and medical staff play an important part. No matter what is happening in their lives they are tasked to care and love hard. Dr. M and Dr. D, my prayers are with you and I love you both hard.
part time getting all A’s. He still gets a little tired writing but that is coming along. Here’s my mom struggle…before the stroke he was a normal teen boy doing the push and pull; the pushing of my nerves while trying to pull away into his own adulthood. I get it, I’ve had to let go of my other two and that’s how it goes. After the stroke, he became my baby again. It was an incredibly difficult time and sometimes when I close my eyes I can still see him lying in that bed in the ICU and it makes me cry. There are things I can’t even talk about without choking up including the last night we spent at the hospital together, praying, crying, and talking about all that had transpired, before 
being discharged to come home. Now that he’s about 95% back to being a normal teen boy, there’s that push and pull again, and I have to relearn it. As one radio DJ said, it’s like a hard break up. For me it’s like breaking up, getting back together, then going through an even harder break up again. Makes me sad but I know it’s necessary. Motherhood is hard and time flies. Besides Alex, my oldest is graduating college in a few months and planning grad school farther away, and Audrey is studying overseas this whole semester. It’s a mixed bag of sadness and joy.
what will hopefully be his last procedure having to do with his stroke last summer. Afterward, while Alex was in the recovery room, the doctor came in and told us that all of the vessels in his brain looked normal and that he shouldn’t have another stroke due to AVM in his future. Done. A few hours after leaving the hospital I was alone in my car headed to the grocery store and I started to cry which then turned into weeping. I couldn’t stop. I realized that since Alex’s stroke in August, I was remaining strong and focused on him and his recovery, trying to keep his and my own spirits up, and now, I was letting it all go. All I felt was an overwhelming sense of gratitude. August and September were a blur of worry, grief, and tears and now, these were tears of joy, gratefulness, and relief.
focus on my own stuff, which was kind of a blessing. Here’s the lesson in that, when you focus on others you focus less on yourself, it’s a good thing most of the time. I honestly didn’t even think about my scan until the night before. I got the results today and I’M STILL STABLE!! My cancer is still there but slow growing and as my doctor said in his text, ‘nothing to worry about.’ Tears, actually, lots of tears.
It was a tough 6 weeks. What sustained me and gave me energy? Love. Love is a superpower; love beyond any words, love that took action. My fierce momma bear love gave me the energy I needed to take care of Alex and to be there fully for him. The crazy love I received from my home team: my husband, kids, parents, friends, Alex’s friends and teachers, the parents of Alex’s friends, etc, helped sustained my spirit and kept me secure that yes, the world at home and around me were also taken cared of. The love Alex and I felt from the nurses, staff, work friends, acquaintances, and even wishes from social media strangers was incredible. Love does make the world go round and life always moves forward. ‘It is good to love many things, for therein lies the true strength, and whosoever loves much performs much, and can accomplish much, and what is done in love is well done.’~Vincent Van Gogh
Anna's Lipstick Journey 