It’s week, I don’t even know anymore, of Covid quarantine. I have semi-adjusted to the daily web based calls for work, various networking calls, dog walks, exercise, cooking, etc, and of all those things, I don’t want to cook anymore…I’m bored with my cooking. I have developed a couple addictions; one to pork rinds (the ‘healthy’ keto kind from Whole Foods), and I can’t get enough of a cleaning instagram account called @gocleanco. It’s seriously a before and after gold mine of house cleaning. No, I haven’t deep cleaned my house from top to bottom nor have the desire to, but I love watching the cleaning stories on this account and I did buy powder Tide for the first time ever (if you watch, you know). It’s weird.
Yesterday I found out that one of the sweet cancer fighters I sent lipstick to a couple months ago passed away. If you’re not familiar, my lipstick company does a buy one/give one. Meaning, if you buy a lipstick, I donate one to a cancer fighter/survivor that you know, and if you don’t know anyone, I give partial proceeds to cancer organizations I’ve chosen. I got the information about this beautiful woman from one of my repeat customers. She was a young wife and mom of two little boys with a constant smile on her face. I was so happy to send her lipstick in hopes to bring a little joy to her fight. Days later I got a little thank you from her via private message on Instagram. She was super excited and grateful, and was hoping to try more colors. Hearing the news of her passing made me so sad and reminded me again how fleeting life can be, and that cancer is a bitch.
I also heard from a high school friend who had just learned of her diagnosis and felt they had no one to talk to who knew how it felt, so she reached out to me. Here’s what I said:
My advice to you right now is to first, breathe. I have learned that there are lots of things we cannot control. I knew what my job was; seek the best medical advice, stay calm, eat well, try to exercise, go to my medical appointments, etc., the rest I had to let go and trust God, NO MATTER WHAT THE OUTCOME. We always have our own plan for our lives and it stinks when it’s derailed, but you have to let that go. I’m doing my part and I’m trusting God and my medical team to do theirs. Second, share your story because someone needs to hear it, even if it’s just you. The more you speak it, the more power your story gives you. My blog definitely helped me release some emotions but I do not hesitate to share my story because it allows people to help you, or at the very least, to understand you better. God and faith to me came not only in my prayers, but in the hands and feet of those who surrounded me. Next, seek counseling. I started seeing a counselor after the 3rd time I had cancer and it was eye opening and super helpful. Last, cry your eyes out but when you’re done, prepare your mind to fight; even if that cycle happens every 5 minutes. It may sound cliche’, but try to find at least one thing to be grateful for at the end of the day. Hope looks different to me now that I’m stage 4. Lots of people gauge hope in some future, but I’m too familiar with the concept of time and all we really have is the present. Hope to me looks like looking into the past and seeing how far I’ve come, thinking about my days and being grateful, finding bits of magic like a flower blooming or a friend calling. As much as life is complicated, it’s also really simple.
All of the things I said can be applied to our current Covid situation. The uncertainty and anxiety that everyone feels is how cancer patients feel all the time…welcome to our world. Author, professor, and Stage 4 cancer fighter Kate Bowler calls life a chronic condition and says we are always looking to be better, look better, feel better. She says that it’s ok that life isn’t always better, we can find beauty and meaning and truth around us, but there’s no cure to being human. If uncertainty is not the ultimate enemy, then we get to live in the space between with more courage.
That’s where I have to live, the space between. My cancer has been stable almost three years but it has not disappeared. I have been filled with uncertainty about my future but I don’t fear it and I no longer view uncertainty as my enemy. It just is, but I know God is with me holding my hand, and that’s enough.
What is Courage? Courage does not always roar. Sometimes, it is the quiet
voice at the end of the day saying, “I will try again tomorrow”. ~ Anonymous
Starting week 6 of our quarantine but who’s counting and how is everyone? I have to say, I have run through the gamut of emotions. The first week or so I was just busy; busy preparing the house for all of the kids to be back (the older 3 are in college and 1 was studying abroad), getting groceries, preparing the home office to transition to 100% work from home for both me and my husband, etc. The second week was still busy but I felt a little more anxious and maybe depressed. Week 3 was when my anxiety peaked and I think it’s when I cried the most, not to mention I think it may have been the week when all the kids started really getting stir crazy. Remember, they are all older teens and young adults and are all used to their independence so being stuck with all their cars in the driveway is a little crazy. Yes, we have lots of cars in the driveway and street so it looks like we’re having a party…trust me, it’s no party in here.
going to grad school to become a Doctor in Physical Therapy. Here’s the clincher, he was going to start grad school in the fall but recently got accepted to another school he’d rather go to which starts in May…MAY. They have redesigned their first semester to have it all online, then he moves for in person classes for the fall semester (hopefully). It’s a lot all at once. I’m not sad that he’s grown up and moving to another state far away for grad school, I’m grieving the fact that I have Stage 4 cancer and I want to soak in every single moment and my first born child graduating college is a ceremony I just wanted to see, cry, and soak in. Yes, it’s about me, but it’s about him too because I know how hard he has worked to do well and finish an undergrad science degree in the honors college in 4 years. Sigh. This Friday, the university president will have a Facebook live commencement event; thank you social media, he graduates via Facebook.
time he (and I) left the hospital, it was fall. We lost summer. Now with Covid, by the time it’s over, it will probably be summer, so we lost spring too. Here’s the deal, IT’S A BLIP IN TIME and with Stage 4 cancer, I love and LIVE for ALL blips in time and having time in general, by trying to be grateful always, and trying to always find the magic. I emphasize ‘trying’ because it can be really hard sometimes. This is just a blip in time to be a little less selfish and a little more self-less for people like me, or your parents/grandparents, or even for a complete stranger. ‘No one should seek their own good, but the good of others.’~1Cor 10:24
amazing doctors, nurses, and support staff. About 4 years ago one of my original doctors that helped navigate my cancer journey retired and I cried my eyes out. He was the one who called me with the news that my cancer had returned the 2nd and 3rd time. He researched new therapies and called different surgeons and oncologists; this busy doctor made me feel like I was his only patient for the 6 years that I saw him. I love all of the people that cared/care for me. What a difficult job they have trying to comfort and encourage patients, while also doing their jobs and what’s medically necessary. The impact that caregivers have on our lives is pretty astounding. Having cancer comes with baggage; fear, sadness, uncertainty~ it’s a dark time and medical staff play an important part. No matter what is happening in their lives they are tasked to care and love hard. Dr. M and Dr. D, my prayers are with you and I love you both hard.
part time getting all A’s. He still gets a little tired writing but that is coming along. Here’s my mom struggle…before the stroke he was a normal teen boy doing the push and pull; the pushing of my nerves while trying to pull away into his own adulthood. I get it, I’ve had to let go of my other two and that’s how it goes. After the stroke, he became my baby again. It was an incredibly difficult time and sometimes when I close my eyes I can still see him lying in that bed in the ICU and it makes me cry. There are things I can’t even talk about without choking up including the last night we spent at the hospital together, praying, crying, and talking about all that had transpired, before
being discharged to come home. Now that he’s about 95% back to being a normal teen boy, there’s that push and pull again, and I have to relearn it. As one radio DJ said, it’s like a hard break up. For me it’s like breaking up, getting back together, then going through an even harder break up again. Makes me sad but I know it’s necessary. Motherhood is hard and time flies. Besides Alex, my oldest is graduating college in a few months and planning grad school farther away, and Audrey is studying overseas this whole semester. It’s a mixed bag of sadness and joy.

lipstick company with beautiful thrivers; ladies thriving through life despite health surprises. Survivors of breast cancer and lymphoma, one still fighting brain cancer, and one living with alopecia. It was a magical morning for me and one that brought me tears. It struck me that each one of us was fighting or had fought something that was trying to take us down. We had that common thread of fear, sadness, insecurity, but here we were, surviving, overcoming, fighting, and smiling. I had each of the ladies write their stories down in my notebook and the last words of one of the women were, ‘Ever Onward.’ Perfect. Every one of us pressing forward on our journeys. This is what my lipstick company is about and it made my heart full. Life IS our canvas and these are the things that can happen when you choose to get out of your comfort zone…when you decide to leave the house.

Last weekend I got to spend some time in Sedona, Arizona. Sedona is probably my favorite place in the whole world because of its beauty and the peace I have felt every time I’ve gone there. Typically I’ve gone with girlfriends and we’ve enjoyed walks, food, and spas but this time I went with my husband. A die hard water person, he was hesitant to visit the desert but on the road into Sedona after seeing the first giant red rock, I believe he was hooked into the magic. On the second day (we were only there for 2 days), we decided to pick a trail and hike. I asked the front desk person at our motel for a map of the trailheads and for a short description of the trails. We decided to hit a trail late in the afternoon, picking the ‘light to medium difficulty’ 3 mile trail with ‘the best views’ (according to the lady). Long story short it was a beautiful trail near the top of a mountain with spectacular views but instead of the 3 miles, we ended up on different trails along the way and about 5 miles and 2 hours in, we started wondering if the trail was ending soon and if was going to be anywhere near where we parked. We kept a comfortable pace until the sun started going down and we started
seeing animal (mountain lion) tracks along the way (the trail was a little muddy in some parts from rain earlier). Over 6 plus miles later, with the last mile or so uphill, we were exhausted, hungry, cold, but finally back in our car. Whew! It was exhilarating! 5000 foot elevation, 6+ miles, metastatic cancer with multiple lung nodules, the hike was a little challenging going uphill at various times but dang, when you think you can’t do something but do it anyway…it takes your breath away (literally for me).
really knowing if you’re going the right way or if there may be a little danger ahead. You take one step at time with a little fear and trepidation but you know that stopping is not the solution. Keep moving. Then there are times like the gym when you know you’re on the right path but you’re simply losing steam. Dig deep. Surround yourself with people that can motivate you and those that believe in you. Keep going.