A couple of weeks ago I had my scans to check on the multiple cancer nodules housed in my lungs. It has been almost exactly 7 years since I was diagnosed with Stage 4 metastatic cancer and I’ve had scans every 3-6 months for SEVEN YEARS. STABLE. I usually greet the news with overwhelming relief and crazy joy but this time was different; still relief but with maybe more contemplation? I’m still processing the news and why the ‘celebration’ felt different. I’m thinking about what it has meant to be stable all these years and how it’s changed me and my perspective, how I’m living, and maybe how I want to live going forward. I cry thinking about how the word cancer first changed MY LIFE 16 years ago and how the words ‘Stage 4’ changed ME 7 years ago after wrestling with cancer two other times in between.
We talk about gratitude a lot and I want to say I’m more grateful, but am I? I don’t want to have to think about cancer anymore. I don’t want to wonder if my next scan will still be stable or if I feel ‘off’ one day that my cancer is spreading, or if it’s humid and the air is heavy and I have a harder time breathing if it’s more or growing nodules in my lungs. I don’t want to wonder if I will make it to a child’s wedding or meet my first grandchild. I also don’t want to grieve what might be and miss what is. I know none of this is in my control and that there may be other factors that take me out, but cancer is what’s in front of me or should I say inside of me. I’m tired of the cancer dance. I’m tired. But yes, I’m still beyond grateful because without the weight of it, I would maybe miss the magic around me or waste even more time and air stressing about stupid stuff. I’m still tired.
The concept of impermanence is hard but living in duality may be even harder; making decisions can feel heavy, caught between I don’t care and I care too much. Talking and saving for retirement and but can’t focus on anything but today, planning for the future but wondering about the scan results six months from now, etc…it stinks. ‘I don’t care’ is my brain saying ‘I can’t process that right now’ or ‘does not compute’.
I’ve changed. Quality time has always been my top love language, but now it’s exaggerated. If I have a chance and the funds to see my kids, I will go. I want to surround myself with people whose joy is contagious. I crave community because the richest person in my book is one that’s filled with love, laughter, and time with family and friends. I will continue sharing my story and being vulnerable in hopes that it allows whoever else to be vulnerable with theirs. We learn from each others’ stories and vulnerability makes us more human. The perfection we see on Facebook and IG is mostly fake, fills us with fake longing, sometimes shame, envy and sadness that we don’t have what the picture shows us when truly the picture is just a picture. It’s flat and missing the three-dimensional parts of peoples lives. I’m softer, my heart feels like mush and I cry sometimes over the simplest of things. I’m also harder, I’ve learned to say no a little more without the guilt behind it. I don’t want to struggle or people please anymore to get attention or be included because time is too valuable and how exhausting is that?
The world feels like it’s on fire; people are more short tempered, judgmental, angry, self centered, and just ‘harder’ or hard hearted in general, unwilling or afraid to cross the lines or even share the lines of what they think how things ‘should be.’ Well, we all suck and I’m no better, but I don’t want to be one of those grouchy people, it’s such a waste of precious air.
I’m learning to embrace the impermanence of life even though it was by force (or I should say by diagnosis). No one gets to live forever. In a book I recently finished it said “That time always ends a second before you’re ready. That life is the minutes you want minus one.” -The Invisible Life of Addie Larue, by VE Schwab. There’s no best time, no one’s ever ready.
Hope. Hope to me shows up when an adult child texts me that they love or miss me (without my prompting), when someone shows kindness, when my dog looks at me and tilts his head like he’s paying attention and understands everything I say, etc. Hope is tangible, it’s simple and it’s always in your face when your heart is broken enough to let the light in. My heart is broken. It’s not a bad thing, it just means it’s tender and has lots of space for love, joy, hope, and empathy. Yes, grateful for that too.
Life is short. God loves me, Jesus carries me, that’s my solid. I’m reminded of His love and goodness constantly. My cancer is stable. 6 months from now it may not be, or maybe it will be for the next 20 years, who knows? Today I will breathe in life and take this word stable and add it to my bank of hope for however long it carries me.
‘Life is brutally hard & still holds holy beautiful holy moments & we are all standing on the edge of more joy, more wonder, more awe in God, who carries us through all the waves of heartache and heartawe, and into the expansive love of His heart.’~ Ann Voskamp
It’s week, I don’t even know anymore, of Covid quarantine. I have semi-adjusted to the daily web based calls for work, various networking calls, dog walks, exercise, cooking, etc, and of all those things, I don’t want to cook anymore…I’m bored with my cooking. I have developed a couple addictions; one to pork rinds (the ‘healthy’ keto kind from Whole Foods), and I can’t get enough of a cleaning instagram account called @gocleanco. It’s seriously a before and after gold mine of house cleaning. No, I haven’t deep cleaned my house from top to bottom nor have the desire to, but I love watching the cleaning stories on this account and I did buy powder Tide for the first time ever (if you watch, you know). It’s weird.
Starting week 6 of our quarantine but who’s counting and how is everyone? I have to say, I have run through the gamut of emotions. The first week or so I was just busy; busy preparing the house for all of the kids to be back (the older 3 are in college and 1 was studying abroad), getting groceries, preparing the home office to transition to 100% work from home for both me and my husband, etc. The second week was still busy but I felt a little more anxious and maybe depressed. Week 3 was when my anxiety peaked and I think it’s when I cried the most, not to mention I think it may have been the week when all the kids started really getting stir crazy. Remember, they are all older teens and young adults and are all used to their independence so being stuck with all their cars in the driveway is a little crazy. Yes, we have lots of cars in the driveway and street so it looks like we’re having a party…trust me, it’s no party in here.
going to grad school to become a Doctor in Physical Therapy. Here’s the clincher, he was going to start grad school in the fall but recently got accepted to another school he’d rather go to which starts in May…MAY. They have redesigned their first semester to have it all online, then he moves for in person classes for the fall semester (hopefully). It’s a lot all at once. I’m not sad that he’s grown up and moving to another state far away for grad school, I’m grieving the fact that I have Stage 4 cancer and I want to soak in every single moment and my first born child graduating college is a ceremony I just wanted to see, cry, and soak in. Yes, it’s about me, but it’s about him too because I know how hard he has worked to do well and finish an undergrad science degree in the honors college in 4 years. Sigh. This Friday, the university president will have a Facebook live commencement event; thank you social media, he graduates via Facebook.
time he (and I) left the hospital, it was fall. We lost summer. Now with Covid, by the time it’s over, it will probably be summer, so we lost spring too. Here’s the deal, IT’S A BLIP IN TIME and with Stage 4 cancer, I love and LIVE for ALL blips in time and having time in general, by trying to be grateful always, and trying to always find the magic. I emphasize ‘trying’ because it can be really hard sometimes. This is just a blip in time to be a little less selfish and a little more self-less for people like me, or your parents/grandparents, or even for a complete stranger. ‘No one should seek their own good, but the good of others.’~1Cor 10:24
For the last couple of years I’ve lived with a steady undercurrent of uncertainty and occasional fear and sadness from a diagnosis of Stage 4 metastatic cancer. Daily, I have prayed for more time, less fear, maybe for my cancer to miraculously disappear or at the very least, remain stable for the next 50 years. Cancer has forced me to face mortality, the fragility of life, and the real possibility of death sooner rather than later. One author compared living with Stage 4 cancer to walking around with a bomb strapped to your chest not knowing when it may explode. Now add coronavirus.
amazing doctors, nurses, and support staff. About 4 years ago one of my original doctors that helped navigate my cancer journey retired and I cried my eyes out. He was the one who called me with the news that my cancer had returned the 2nd and 3rd time. He researched new therapies and called different surgeons and oncologists; this busy doctor made me feel like I was his only patient for the 6 years that I saw him. I love all of the people that cared/care for me. What a difficult job they have trying to comfort and encourage patients, while also doing their jobs and what’s medically necessary. The impact that caregivers have on our lives is pretty astounding. Having cancer comes with baggage; fear, sadness, uncertainty~ it’s a dark time and medical staff play an important part. No matter what is happening in their lives they are tasked to care and love hard. Dr. M and Dr. D, my prayers are with you and I love you both hard.
part time getting all A’s. He still gets a little tired writing but that is coming along. Here’s my mom struggle…before the stroke he was a normal teen boy doing the push and pull; the pushing of my nerves while trying to pull away into his own adulthood. I get it, I’ve had to let go of my other two and that’s how it goes. After the stroke, he became my baby again. It was an incredibly difficult time and sometimes when I close my eyes I can still see him lying in that bed in the ICU and it makes me cry. There are things I can’t even talk about without choking up including the last night we spent at the hospital together, praying, crying, and talking about all that had transpired, before 
being discharged to come home. Now that he’s about 95% back to being a normal teen boy, there’s that push and pull again, and I have to relearn it. As one radio DJ said, it’s like a hard break up. For me it’s like breaking up, getting back together, then going through an even harder break up again. Makes me sad but I know it’s necessary. Motherhood is hard and time flies. Besides Alex, my oldest is graduating college in a few months and planning grad school farther away, and Audrey is studying overseas this whole semester. It’s a mixed bag of sadness and joy.
what will hopefully be his last procedure having to do with his stroke last summer. Afterward, while Alex was in the recovery room, the doctor came in and told us that all of the vessels in his brain looked normal and that he shouldn’t have another stroke due to AVM in his future. Done. A few hours after leaving the hospital I was alone in my car headed to the grocery store and I started to cry which then turned into weeping. I couldn’t stop. I realized that since Alex’s stroke in August, I was remaining strong and focused on him and his recovery, trying to keep his and my own spirits up, and now, I was letting it all go. All I felt was an overwhelming sense of gratitude. August and September were a blur of worry, grief, and tears and now, these were tears of joy, gratefulness, and relief.
focus on my own stuff, which was kind of a blessing. Here’s the lesson in that, when you focus on others you focus less on yourself, it’s a good thing most of the time. I honestly didn’t even think about my scan until the night before. I got the results today and I’M STILL STABLE!! My cancer is still there but slow growing and as my doctor said in his text, ‘nothing to worry about.’ Tears, actually, lots of tears.
Anna's Lipstick Journey 