Tag Archives: motherhood

Amazing and Awful

27 Jun

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‘Life is amazing. And then it’s awful. And then it’s amazing again. And in between the amazing and the awful it’s ordinary and mundane and routine. Breathe in the amazing, hold on through the awful, and relax and exhale during the ordinary. That’s just living heartbreaking, soul-healing, amazing, awful, ordinary life. And it’s breathtakingly beautiful.’~L.R. Knost

Isn’t that the truth? Last Friday I took my daughter to her college orientation. Leaving her at the dorm the night before was awful (for me) and as I sat there in the silence of my hotel room I got teary-eyed thinking about all of my time with her leading up to this point. The orientation itself went well and it was pretty great seeing her be independent, meeting people, socializing, asking questions, I was so proud of the person she has become and is becoming. We ended the day by driving to northern Michigan to spend a few days at the lake; awful to amazing in less than 24 hours with some ordinary time to relax and exhale in between.

Last week I had my 3 month CT scan and as much as this has become a routine for me I was still anxious. I mean, I guess there are some things to be anxious about. I have formed a love/hate relationship with this because as much as I want to know if my cancer is stable, growing, (or gone), I also don’t want to know. I got the results over patient portal a few days ago and met with my doctor today. Right now ALL NECK AND

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They made me wear this today because I’m coughing

LUNG NODULES ARE STILL STABLE!!  Whew! So, awful last week, amazing today, and really awful (having cancer) and amazing (having stable disease) at the same time. There’s my current struggle. How do I act, process, make decisions and have lots of amazing moments but still have the awful undercurrent of cancer all.the.time.? Do I ignore it? Do I pretend I don’t have cancer and go about my merry way? Having cancer is not in my face all the time but it’s always looking at me through my rear view mirror, you know what I mean? It’s just always there so when prepping for my daughters prom, graduation, college orientation, it’s joyful and exciting but then in my ‘rear view mirror’ I’m reminded cancer follows and I start hoping I’m around for my son to do the same in a few years. Right now I’m 60/40; 60% looking forward , 40% distracted by cancer but I want to get to 90/10. How awesome would it be to have cancer thoughts only pop up 10% of the time. How awesome would it be to not have longer term visions and decisions be tinged with ‘but wait, I have cancer’; thoughts of retirement, grandkids, travel, etc. intertwined with I have cancer that’s really waiting to party in my body. It’s weird. I know I can’t ignore it or control it and I also know I don’t want it to consume me and influence every decision I make. Hmmmm . I was reading about courage again and read, ‘Alone of all creeds, Christianity has added courage to the virtues of the Creator. For the only courage worth calling courage must necessarily mean that the soul passes a breaking point and does not break.’~unknown

Here’s the good news. I don’t feel broken yet so maybe I’m brave. Maybe I have courage. My doctor told me today that since I’ve been consistently stable for the past year, we are going to stretch my CT scans to 6 months unless something changes in how I feel. I don’t want to hold my breath for 6 months. Maybe I’m feeling funky because it’s scan week. All I know is I want to live this ‘..heartbreaking, soul-healing, amazing, awful, ordinary life.’ I’ll take the awful, ordinary, mundane, and routine and be more intentional seeking out the amazing!

Today I wear Chantecaille Lip Chic lipstick in Nocturne. I LOVE these lipsticks. They have great color and are super moisturizing. I chose this color because it’s a bright berry which is perfect for summer or when your allergies make you look blah and you want just one pop of color! Cheers!

Sick

13 Jun
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Me and my baby brother recently 

I have heard more times than not that I don’t look sick. Believe me, it’s a great compliment. Over the past week or two there have been some significant events happen with people who don’t look sick. The shocking suicides of Kate Spade and Anthony Bourdain, and the sudden unexpected passing of my dental hygienist who was a young, 39 year old mom of 2. My kids and I had known and been going to ‘S’ as our hygienist for probably 10 years so the news came as quite a shock for all of us. She and I went to the same gym so I saw her every so often and what looked like a healthy young woman was suddenly gone. She didn’t look sick.

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2010, week 6 of radiation. Minus 30 pounds, burnt inside. Do I look sick?

I would venture to say that 99.99% of everyone has some type of ‘ailment’ they struggle with on the inside whether it’s anxiety, insecurities, mental health, or actual physical health that the world doesn’t see from the outside (or social media) appearance. I spoke to a coworker whose husband has suffered from cancer awhile and doesn’t always ‘look’ ill and told her the biggest thing to remember in terms of being a caregiver for someone with a chronic illness is that we generally function under 100% all the time. Meaning, our 100% is your 85% so I told her if he’s complaining that he’s not feeling well to have compassion because he’s really not feeling well and has actually fallen below that 85% which is his norm.  For me, I have compromised breathing…all.the.time., I can never run a marathon let alone run 5 minutes straight on a treadmill because I simply can’t breathe and it takes a while to catch my breath, my left arm and hand have been numb (and getting worse) for the past few years which means I can’t play the piano anymore or confidently hold a cup of coffee with my left hand, or go through a drive thru without reaching over with my right hand because I’m not confident with my left, and when I say I’m tired, I’m exhausted and of course there are other things I struggle with regularly. Oh and I have massive amounts of hair falling out from my radiation experiment from last April. So my feeling 100% good is really about equivalent to everyone else’s 85%. I keep a full time job, try to be at all my kids’ activities, and try to keep a smile on my face. It’s how I live and you can’t see that I’m at 85%.

What does that mean for all of us? We need to be more gentle with each other. We need to see each other with compassionate eyes and know that beyond the exterior smiles, Facebook posts, beautiful instagram pics, etc there are stories of pain, illness, suffering, insecurities, and internal struggles that plague all of us. ‘The more beauty we find in someone else’s journey, the less we’ll want to compare it then to our own.’~Bob Goff. We need to love more and frankly as a Christian I am sick of the Christians acting like judge and jury (that’s a whole other blog). Jesus came to show us how to love and show grace and mercy and the world needs plenty more of that. Love God, love others no matter what.

I have another scan coming up in a week and I’m a little scared. I read this quote today, ‘Courage doesn’t always roar. Sometimes courage is the quiet voice at the end of the day saying I will try again tomorrow.’~Mary Anne Radmacher. Despite my apprehension I have trust in the One who carries my burdens on His shoulders so in my quiet voice I say thank you for another day. I’ll be ok. I hope I never really look sick but let’s all be aware that every single person is dealing with something we don’t see. Be kind. Be aware. Be loving.

She made broken look beautiful and strong look invincible. She walked with the universe on her shoulders and made it look like a pair of wings.’~Ariana Dancu

Today I wear Tom Ford lipstick in Violet Fatale. This may be the most expensive lipstick I own. These lipsticks are pretty amazing. I didn’t like them at first becuause I thought they were a little dry but recently I’ve come to appreciate the semi-moisturizing but long wearing power of these lipsticks. I chose this color because it’s  bright but not too crazy and fun for summer! Cheers!

Like a Child

7 Jun

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It’s been quite a week. You know when you’re so busy that you feel like if you stop moving your head will explode? It’s kinda been a week (or 2) like that. With all the high school senior activities (clap out, picnic, prom, awards night, and graduation) along with my youngest’s Freshman awards and all the other kids’ end of year activities it’s been non-stop. Add to that a small change in my job with additional training necessary and also trying to put feet on a dream I’ve had for years (more to come later on that topic), it’s  been A LOT! I have to say though that ALL these activities have made me exhausted but have also given me life. I LOVE my kids and I wouldn’t miss any of this for the world. Watching and helping my daughter navigate through all of these events has been great and again, bittersweet because I know she’s about to enter into another phase of life. On occasion at her events I would find myself wondering if I’d still be around for my son for his senior year to do all these things with him too (3 years from now). It stinks and it’s heartbreaking to think about but I can’t help it, that’s what cancer does to your thought life.

I listened to a TED talk the other day about wisdom and there was a young girl talking about how she thought that adults should really think a little more like children. Her 12 year old take on things was pretty impressive and it made me think about my teens/young adult kids. One of the most difficult thing about having teens/young adults for me is their attitude (and them driving of course). It’s laughable to me when they speak like they know it all and they’ve been through life’s traumas and they know better then you. I admit it takes a lot for me not to roll my eyes. I try to hold my tongue and not tell them ‘how life really is’ or say, ‘you’ll see’ but those words escape my mouth more times than not and if the words don’t, definitely my attitude does which then is followed by the ‘mom you’re so annoying’ which leaves me hurt and annoyed…it’s a cycle. After listening to this girl I thought about the different bible verses that talk about a childlike faith and it made me think about my kids. I don’t ever want to squelch their dreams and passions. They will experience life and all it’s joys and hardships without me preparing and telling them about it now. I try to keep my mouth shut a little more while simultaneously keeping my eyes in a stationary position and every now and then I let them be annoying and annoyed without letting it hurt my feelings too deeply (that’s the hard part).

So, are young kids wise? Nah. Does wisdom come with age and experience? img_0144-1Sure, but should we as adults sometimes be more like a child when living life? Absolutely.Our next door neighbor has 2 young children and they’re always playing in the yard. Here’s what I know, they play with reckless abandon. When it’s raining and muddy they’re barefoot in the nasty mud, they run down the small hill in the yard with no fear, and on occasion I catch them staring at some of the flowers like they’ve never seen anything so beautiful; they have fun in the simplicity and they notice the beauty. Adults think too much, we lose that sense of wonder somewhere along the line, and I think we lose a little of our authentic selves because we fear judgement and rejection. Kids still believe in the possibilities.  Because of cancer I now straddle between fear and wonder and it’s not so Annababybad. Living with cancer daily has given me fresh eyes and the intention to see the world and people with wonder again. Cancer and a more definitive timeline on life has opened my eyes to the beauty I’m surrounded by, has helped me not to take things so seriously, to play when I want to play, and in an awesome way to dream big and dive fearlessly into those dreams. Cancer has also allowed me to be more honest and real with people and frankly they’re more accepting of the honesty because who’s going to be mean to someone with cancer (hahaha, just kidding)? You know that line, ‘Quit acting so childish.’? Well maybe sometimes acting childish is a good place to be.

Today I wear Estee Lauder Pure Color Envy in Lacquer Lover. I’ve been a little obsessed with metallic lipcolor for whatever reason and this one fits the bill. I can’t describe the color and it looks nothing like the picture. All I can say is that these liquid lipsticks are moisturizing and this color is great for summer and I think it would look good on everyone! Cheers!

Daughter

31 May

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This is the last week of high school for my daughter, my second born. I have to say that this week came upon me so fast. It’s been a tough year with the cancer re-emergence and I have to admit I was (am) a bit distracted so the other night when it was Senior Award Night and she had to put her cap and gown on, I got really teary-eyed. The finality of her high school days was staring me in the face. Have you ever read things about middle children or the second child? I never believed it because all kids are different but that was another factor in my shock and awe experience when she put on her cap and gown for honors night. When my oldest was a senior I was on top of every date and parent volunteer opportunity; the breakfast, the sr. sunset movie, the walk out, senior picnic, awards, prom, etc., all events were listed properly in my calendar and all t-shirts for each event ordered before the deadline. With my daughter, well, there has been a morning or two this past week of sudden stress because of a forgotten event and/or lack of order/deadline of t-shirt for said event, I have missed writing down dates in my calendar and honestly have sticky notes and flyers all over my desk (and that includes flyers and forms for the other kids). So, as I stood there watching her zip up that cap and gown, my heart burst. Parents can only give good advice or put them on the right paths, but the final forming of a person’s character lies in their own hands.’~Anne Frank

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There are so many things I want to say. Daughter, the day you were born your face was bruised because you were strong and you just wanted to push your way out into this world on your own terms. That same strength, drive, and strong will has pushed you to work hard in school and sports and has brought you to this point. I was beaming with pride as your name was called over and over for various awards at senior honors night but there is much more to life than those awards and thankfully, I know you know that. It sounds so cliche’ but you have grown into a beautiful, smart, and lovely young lady. I love your fresh faith and your growing sense of passion and purpose for the marginalized people of this world we live in. You are hope for the future and watching you grow has brought me so much joy. You graduating high school is bittersweet for me but I guess you can’t have the sweet without the bitter. When you leave for college I will miss your hugs, shopping and eating out with my favorite foodie, sitting on the couch, and simply your presence. Outside your bedroom door I have cried when you hurt, prayed for you, and felt your joy.  Life is full of surprises so always be pliable. You will love, you will hurt, people will disappoint you and sometimes you may even be angry at God. It’s ok. Always know that God’s love never changes and He’s always there. I will still cry with you, pray for you, and celebrate your joy even though your bedroom door will be miles away. Continue following your passions because God put them there and He will guide you. Always be grateful, stay curious, ask questions, and surround yourself with people that bring you joy. Letting go is not easy for me but I can’t wait to watch you fly. I love you baby girl. She is clothed in strength and dignity, and she laughs without fear of the future.~Proverbs 31:25

Lipstick today is Cherry Chapstick. It’s all I wore in college. Cheers to the Class of 2018!

 

 

I am a mom

11 May

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Mother’s day is around the corner and I am a mom. I am a mom with cancer. What does that mean on mother’s day for me? How have I changed?  This is hard to talk about. The first time I got cancer my kids were young and all I could think of was to fight for them. I have to say, what lessened the urgency or ‘scare’ from the word cancer for me was that I had thyroid cancer which I read about and was told even by my doctors that it was the easiest and best cancer to have because of the high cure rate. When things turned out a little more complicated after the first surgery I was scared and yes, I cried…a lot. My img_1886kids were only 5, 7, and 10 at the time and I wasn’t ready to leave them (are we ever ready to leave them?). I fought, I cried, I prayed, I survived and for the next 2 years cancer came back again twice but same thing, I fought, I cried, I prayed, and throughout those years and the surgeries, and the treatments, I tried to make their lives as normal as possible. I continued to work, I volunteered at their school, I brought cupcakes and donuts to their classes for their birthdays. I rarely missed anything.

Today, 10 years later, cancer is back and it decided to spread. My kids are older, facetune_01-04-2018-18-00-11one is in college, one is headed there next fall, and the youngest is in high school. I’m older, teens are more difficult, life is rarely quiet but I fight, I cry, I pray. Life is funny because there are always things you don’t want to miss. When the kids were younger and I got cancer all I wanted was more time to get them through high school. Now that they’re older I want to see them become adults, get married, maybe meet my grandkids, I want to see them fly and flourish and know that they’ll be ok.

I am a mom. Like all moms we have img_1634pieces of our hearts walking and breathing outside our bodies. We feel their hurts, we cry when they cry, we’re happy when they’re happy. We worry, we discipline, we direct, we pray, we love, we do the best we can. There are no perfect people or perfect moms but we can love and we can teach them to love. I am a mom with cancer. I may not meet the grandkids but I am planning to. I want to see them make good decisions but I can’t control them. I want them to know that my home is a safe place and that there is love waiting for them here. My love language is time and unfortunately with cancer time is what is threatened the most so that makes my heart hurt a little. Here’s the twist, they’re all older and preparing and wanting to launch so while I try to grasp tighter and grab more moments, they are at the age of friends and freedom, and adulthood, how’s that for crappy timing…but I guess there isn’t really a good time to get sick. So that’s what’s a little different with cancer. I hug a little longer, and grasp a little tighter even though they’re older and they grasp for freedom. I stare at them more because I want to notice and memorize and soak in every nuance of their faces. When they ask to grab coffee or a movie or dinner, I jump at the chance because it’s more time. I don’t get too wound up over dumb things and I let go of simple annoyances quickly because I mainly see things in ‘big picture’ now. I listen more intently and I constantly tell them how much I love them and I fight harder, I cry harder, and I pray harder. To all the moms, stepmoms, aunts, mother figures, teachers, mentors and the village helping raise our children, Happy Mother’s Day.

Maybe every year needs one day to live wide awake to celebrate that we get to call these people ours, that we get to be the one who gets seconds and minutes and hours and days and maybe even years to witness the wonder of them…We get the gift to love our people-and what if we don’t get the wonder of another? Maybe getting to love is getting the best gift of all.~Ann Voskamp

Today I wear MAC Liptensity Lipstick in Habanero. I was looking for something a little bright after my radiation treatment. I needed a little pick me up and this color did it! I love the texture of this lipstick formula and the color is awesome. Habanero is a bright orange/red and I love it. Like the name, this color is spicy and fun! Cheers!

The Great Unknown

26 Mar

I have something kind of big happening next month so my emotions are 50/50; half terrified and anxious, half optimistic. I am going through some tests to see if my tumors can still uptake radiation which if they can, the doctor has to measure exactly how much radiation my body can still tolerate vs. how much cancer I need to get rid of. If the two measurements work out I may be able to do radiation again and be done with cancer for awhile, if not I’m back to exactly where I am today, stable and waiting for treatment (which is not a terrible place to be). The problem is that I’ve already had radiation twice, once with a high dose I-131 which I drank and took internally the first time I had cancer, and the other via external beam the third time with cancer. Because of this, the doctor has to  make an exact calculation of a tolerable amount for me or there are not so pleasant side effects (radiation induced secondary cancer). Lots to think about yet really nothing to think about because I just have to go do it and that’s that. There’s a bit of prep work going into the test prior to the radiation that may or may not work. First, they changed my medication last week, a hard switch, so my body is freaking out right now and second, I have to be on a special diet and have no medication a couple weeks before this radiation testing happens, which means I’ll be beyond exhausted.

I confess, I’m a hot mess thinking about all this craziness, not to mention I’m already exhausted and I can’t imagine how much more tired and achy I’ll be 3 weeks from now. I am really trying to process all this and am going through phases of angry and sad that amidst family things, Spring Break plans, Easter, and trying to prepare my daughter to launch in this last half of her senior year, I have to think about cancer, radiation, and CT scans. It all really stinks but I’m reminded God is still in control. Never be afraid to trust an unknown future to a known God’~Corrie TenBoom

It’s springtime in Michigan and although it has still been a bit chilly the sun has been out for several days in a row (always a bonus). With the stress of the upcoming tests I have forgotten my daily exercise of stopping and acknowledging things I’m grateful for daily. It’s amazing how quickly perspective, mood, stress can change with the simple act of breathing and taking a moment to remember all your blessings. I have so much to be thankful for…ahhhhhh.  I heard someone call this weird in between stage ‘purgatory’, there was a life before cancer, then there’s the vision of the end because of the diagnosis, but mostly there’s the great in-between; between scans, between treatments, between inhaling and exhaling. Truly our responsibility is the same in all these stages, to love God and to love others and I’m adding this one…to leave space for people to love on you too. It’s spring and one of our bushes is already showing new buds. I read an awesome quote which said, ‘Spring is evidence that the God that breathed the world into existence is still breathing.’~Barbara Brown Taylor  God is still breathing, don’t miss the magic.

Today I wear Bare Minerals Gen Nude Buttercream Lip Gloss in Snarky which is rose with gold sparkle. These are super moisturizing and glossy but only have a little bit of color. I like the consistency because they’re not sticky. I chose this color because it’s an easy color to wear and the gold flecks are just enough pop. I also love the name because it’s kind of been my mood lately. Cheers!

Stable, but…

30 Jan

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Stable again! My cancer is still stable! I have to say I am starting to love that word because well, I have to. What does it even mean? It has been such an interesting and emotional ride and just as quickly as the mood swings up it can easily make it’s way back down. Cancer just sucks. I read a blog written by another cancer warrior last week and it. was. perfect. It perfectly described how I’ve been feeling and I have used this analogy with a number of people already. The writer described her cancer as a bomb strapped to her chest not knowing when it was actually going to blow and that is pretty much how I feel. Categorized as stable is exactly that, still with cancer, but with stable and slow growth; practically speaking the tumors have grown less than 20% since the previous scan. I guess this is the goal if you are living with cancer so I try to be really happy about it. Going back to the bomb analogy and combining it with statistics for my particular ‘brand’ of cancer it goes something like this…in 5 years, 50% of the bombs will have exploded and in 10 years, 9 of 10 bombs will have exploded. Barring all scientific advances, that’s a little rough to think about and that is what keeps my heart heavy and my mind focused on time. The other side of the coin is this, science is advancing faster than the doctors can keep up with so it seems statistics change on an almost daily basis, hallelujah! For now, my mind wrestles with the bomb strapped to my chest not knowing when it will go off but every ‘stable’ buys me more time.

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photo cred: kensington church

I am part of a small, closed Facebook support group of people with the same cancer (both type and stage) as me. Since metastatic thyroid cancer is a little more rare it was nice to find a place with resources and people just like me. Today I heard that one of the moderators passed away rather quickly after he took a bad turn just after the new year. His posts were some of my favorite because he brought both quirky and lighthearted comments along with scientific articles. He posted after the new year and said he made it to where the doctors said he would but if he got to 2019 then he would beat that deadline. Yesterday he posted from his hospital bed that things were not good and today he’s gone. Boom. Sad. So just as quickly after rejoicing my stable scan I’m reminded that I still carry that bomb. It has definitely helped keeping my journal of positive moments and points of gratitude daily. It refocuses my mind and reminds me that we all just have today. Most if not all the moments and things I’m grateful for revolve around the people I’m surrounded by. Joy is still my word this year and I am pressing through; moment by moment seeking out things that bring a smile to my face and trying to surround myself with people that bring me joy, love , and lots of laughter. I am finally chasing old dreams and goals too which has been a fun and interesting journey! ‘The real man smiles in trouble, gathers strength from distress, and grows brave by reflection.’ ~Thomas Paine
Stable is great! I will continue to smile, grow strong, and grow brave!

Today I wear Stila Color Balm Lipstick in Elyssa. I do love these lipsticks because they feel like a lip balm and have a peppermint taste and smell while also having great color. I chose Elyssa which is a deep brown berry because it looks fairly dark on me but still has the lightness of berry (so it’s not like I’m wearing black lipstick). It kind of describes my mood at times..kinda dark (because of that stupid bomb), but the brightness is still there shining through. Cheers!

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